Tuesday, October 27, 2009

Talk-o Tuesday

Isaiah 42:16 And I will bring the blind by a way that they knew not; I will lead them in paths that they have not known: I will make darkness light before them, and crooked things straight. These things will I do unto them, and not forsake them.

Maybe this will be my audio day where I talk about all of the audio technology out there available for the nighties of the world. Nighties is a term I use endearingly to my fiancé since the sighted people of the world are called sighties.

Yesterday we met VICTOR. It was apiece of equipment from Human Ware for the low-vision or the blind. It is a way of handing the blind technology that is easy for them to use, carry around, and feel like they have a part of the future in their hands.

Since going blind, our lives have been uncertain. We’re told that with an operation my beau could be back in the sighted world, but without any medical assistance, he remains blind. This is where the uncertainty comes in. Do you give in and accept being blind, knowing full well this is reversible, or do you hold out hope and faith that a miracle will take place?

In today’s society we’re never encouraged to hold out for hope or to have faith. We’re encouraged to face reality, tossing away any hope we might have. Because to many people, there is no such thing as hope. It is just wishful thinking, and who doesn’t wish for a million bucks? Me. And who doesn’t wish for a fancy car? Me. No, I live in reality and hope for the best day that the good Lord gives me. Guess what? Hope wins because everyday I make it through another one.

Back in Texas, the Commission for the blind wanted to do Psych tests to see how stable my beau is and how much he knows cognitively. They sent a man out that was supposed to teach him a few of the skills that he would need as a blind man. Wow, the man gave him a cane and we never saw him again. We were left to learn on our own and I had to use what I could muster to put dots on the microwave, move furniture,quit rearranging.

“You’re on your own.”

Now we’re here in Nebraska and the Commission wants to put him in school for 3-9 months! What? Where is the person that comes out to the house and teaches you? The school isn’t an outpatient thing, it is an inpatient, goodbye see ya later joni thing. I like learning about the blind and the skills that they need,but if he went away,came back out with independence skills, I’d have no idea what he learned while he was away.

So the lady comes out yesterday to show him a VICTOR stream player. Wow, they are so cool! He wants one and hopefully this will be available to him but the way I see it, the Commission is short on funds, and hope is not their friend. The disabled lose out in society.

This technology puts freedom in the blind, low-vision’s hand with streaming audio books, music, notepad, it has a bookmark feature, a recorder and many jazzy features that would make the bulky player obsolete. It’s only $300 and some odd dollars! A 4x2 mega tool. I call it a palm-reader. *wink*

Let’s hope, that hope wins. I will keep my faith, thank you.


Stormcrow said...

Nighties...that's cute! By the way, if you don't want that million bucks, I'll take it!

R said...

Oh I love Victor! I blogged about him too. And nighties is too cute! I love it!

I hear your frustrations. I don't know what i'd do if there was a possibility of getting my site back, but money stood in the way. For me its not possible, so I don't have that dilemma. I can't imagine...

And they want him to go away??? What!?!?! Oh dear...

I'm *hoping* for something else to come along, and keeping the *faith* that that medical procedure will come available.

What about Oprah? Or Dateline? Never know, right? Get this story heard and maybe a surgeon will volunteer, like we hear about?

joni said...

Master Stormcrow,
I'll let you have that million bucks if you give it all to charity!

Don't get me wrong, if his blindness was something that we had to deal with, and we knew it was permanent, we'd deal with it, hopefully with your vigor. *smile*

But there is hope that he will see again and I just want to try every daggum avenue to make it happen.

Your story keeps me going! Our story...keeps going. l.o.l.

All my best,
jnoi *wink*