Rehab Continues: Sunday Came

Matt. 14:14 “And Jesus went forth, and saw a great multitude, and was moved with compassion toward them, and he healed their sick.”

Rehab… Sunday Came

Sunday morning came with the flooding of lights as we woke up. Ray and I slept all through the night and I didn’t even wake for any pain meds. The night shift was leaving and the new shift was coming in and the girls stopped by before shift change to apologize for the bad night. It was NOT their fault! The administration should have been made aware of the short staff and other aides should have been in place. Today came, as did new nurses!

As the new charge nurse came with meds, I explained I needed some crackers, I hadn’t eaten. I went on to tell her about the prior evenings' atrocity and her sympathy poured out like water from a pitcher. She said, “I’ll be right back.” And she came right back too, with a styrofoam bowl full of packets of crackers. She even came back with a cup of coffee, something I had not been offered since I arrived.

She went on to remove the breakfast, dinner and lunch trays from the day before and then proceeded to give me my meds and read my vitals. She also moved the gait belt from in front of the TV so I could watch. She opened the curtains for me and commented on the chilled gloomy rainy day. I told her that to me, every day was a sunshiny day! 
She offered, “I’ll be here all day until six, (I assume a twelve-hour shift) if you need anything just ask for Jan, okay sweetie?” I melted, the good Lord sent someone. I prayed and prayed and He sent someone!

I turned the television on and began watching the morning sermon by Charles Stanley. I’ve always liked his sermons and was glad he was the first show I saw of the day. Cable TV did not impress me in the least. For the week I usually watched rehab shows, where they remodel homes. Ray liked Dancing with the Stars, a show I usually have a gag reflex to, but she turned it so loud I was forced to turn my TV off when it came on. Other than that she would watch game shows.

Then, anxiously, I clicked for a nurse, in minutes two nurses walk into the room. (if they’re tending me, I call them nurses, they earned that title to me) One was a young blonde named Sondra. I told her my son went to school with a Sondra. After small-talk, I found out she had been in the same high school as my son and actually rode the bus with him every day. The older woman, maybe about thirty-seven (older than the twenty-year-old) said she had worked in the cafeteria of his high-school. Now God has really got my attention! What are the odds?

After our dance to the commode and more gossip, I was feeling like my old joking self. I told them of the night before through tears, mind you. I had to put something funny in there or this day would be full of tears. We shared stories, the ladies laughed, I laughed, I had a feeling I would be peeing a lot that day.

My husband would arrive later in the day to hear of the story of the night before as he sits once again, through another bout of my tears. He brought me some BK onion rings to brighten my day, so I wasn’t feeling too bad if I could eat onion rings. He also brought me a box of a medley of chips. He knew I had nothing to snack on at the 5 am wake up, he thought this would help a little. He did try everything to see that I was made comfortable but he had no control over the tears I would unleash over the next couple of days.

Ray had heard the bags of chips as hubby placed them in my side-table drawer. Like a magnet she was drawn to the chips, she wheeled over and peeked around the curtain, with a bright smile as she did every day to greet me at some point in the day and asked, “Whacha doin’?” Ray loved chips! This was her vice. She hid them in her drawer and I would hear the quiet crinkling of the opening of a bag, then the soft munching so as if not to disturb me.

“Putting these chips away that my husband brought me. Do you like chips?”

“Yeth, I thure do.” Her lisp was now growing on me, her smile infectious, the light of joy that she exuded was admirable!

“Would you like a bag or two? What kind you like?” 

“I like them Fritoth, and cheethy oneths too.”

I held up a bag of green onion potato chips, bar-b-que chips, and Fritos. “You like these?”

“Oh yeah,” she said moving her chair as close as she could into my tiny little corner of her room. Her wheelchair could only reach the bottom of my bed. She reached out as I handed three bags of chips to her and her smile lit the room. I didn’t need sunshine on that rainy day.

The physical therapist had come by earlier that day and I told her of the not-so-lovely night before too. I just couldn’t resist. Everyone that came through the door heard my side of the story. The PT lady was the weekend PT because it seems even physical therapist get a break. She was originally from Farmer’s Branch Texas and we bonded over neither of us being from Nebraska. I told her I lived in Texas for six years, she squealed, “Get outta here!” I said, yeah Dallas, close to Farmers Branch. We had a nice visit, spunky chat, and a handshake as she parted. I’d never see her again since my new plan was to be out of the place by weeks end!

As for Ray? Every person that came in the room that day all she could mention was how nice her roommate was, she’d whisper, “She gave me CHIPS.” Emphasis on the chips! Ray was the best part of this nursing home by far! Now… to look forward to getting out of this place.

Rehab Story Continues: Mistakes Happen

Pss. 112:4 “Unto the upright there ariseth light in the darkness: he is gracious, and full of compassion, and righteous.”

Rehab Story Continues: Accidents Happen

As I said in the last post, my chemo meds never arrived after my hubby waited all day for them. After visiting me on Friday, he went home and placed a call to the online pharmacy where we get the chemo meds from. Turns out, the order was NEVER PLACED by my doctor’s office. So he went ahead and placed the order, they would now not arrive until the following Wednesday. Go ahead, you’re allowed to let your jaw drop. If me taking this Oral Chemo is so important, what on earth happened with the ordering? I don’t even think my doctor's office gave us an explanation. Hey, accidents happen, right?

Anyway, here we are on Saturday. My son would come before three if he had a 3-11pm. shift,  six o'clock after Steven left if he had an 11-7am. shift. Now with my son in his new apartment, he was closer to the hospital by about twenty minutes. His place was safely tucked right up the road from the Home, and a good thing because when hubby locked his keys in the car, my son still had a spare key from when he drove my car, to be able to just run the key up to the Home.

I thought Saturday would be a rest day in the Home, but no, the Phys. Therapist arrived about eight o'clock (before breakfast) to assist me in my fifteen minutes of physical therapy. Yes, you read that right, fifteen minutes of PT. I took it upon myself both at the Hospital and the Home to do PT throughout my day on my own. I was determined to make it to that commode without assistance! Back home, when my brother injured his hip his PT therapy sessions were well over an hour, he told my mother. Not for me, I get fifteen minutes. 

My son came and went for a visit by three, and hubby arrived for his visit after he got off of work. He works right up the road too, so no sense in going home, out of the way, when we had such short visiting time. I told him how my meds were never on time and asked if he could bring me some from home. Pain is pain as everyone knows and we NEED something to relieve the gnawing grip. If the Home wouldn’t supply, then my meds from my home would!

This would be my first weekend here and already I’ve seen differences. Well, the obvious is that the Administration nurses were off for the weekend and the young aides were left to fend for themselves. This home had a North and South wing, around thirty residents to each wing, two aides to each wing. It was under construction so the rooms were doubled up with patients, meaning four to use one bathroom, if they were able. They still needed a nurse to assist no matter what.

The cries in the hallway were deafening, the lady across from us kept yelling, “Can someone help me to the bathroom?” What seemed like forever the woman kept being told, “In a minute.” Then there were the televisions blaring, the visitors who thought it would be a good idea to bring their six-year-old to a nursing home, not knowing if it would traumatize them for life! Then the elderly men playing some kind of video games where beeps and whirs echoed.

Ray was in her wheelchair when she called for the nurse to get her into bed. It was about seven o'clock. The aide came in and told her, “Ray I’ll be with you in a minute, we have a situation out here. We’ll get to you as soon as we can.”  I saw no use in telling them that I needed to pee because I know I’d get the same thing. We’d sit and wait. We talked. I tried keeping the conversation light but Ray unleashed some bitter traumatic stuff from her past. I listened. Then she grew angry as her pain was heightening from being in the chair for too long. She pushed the button again, eight o’clock and ticking, the aide popped in with the same words but added, “Please be patient, there is only TWO of us on duty for North AND South, and lights are lit all over the place. Bert fell out of his chair and we have urine all running down the hall, it’s a mess out here, literally.” You could hear the pill cart being wheeled down the hall amid all of the commotion going on. She closed the door and left.

Nine o’clock came and here we were both still needing a tending to, Ray still in her wheelchair, in pain and I in my bed helpless against helping. Ray was now crying, and I too was silently allowing tears to stream down my cheeks. “Ray,” I cried out, “I am not going to sleep until they take care of you.” She sniffled and said, “You don’t haft ta do that. You’re tired too.”

“It’s okay Ray. I’m okay. I want you to be okay!” It was the best I could offer seeing I’m as bedridden as her, except she was left in her chair.

“I’m thore,” she cried. Her lisp could sound so endearing at times. It broke my heart. “We’re frendth aren’t we?” 

“Yes, Ray, we’re friends.”

A smell started permeating the room and I said nothing but knew, Ray had gone to the bathroom in her diaper. I could hear her mumbling under her breath how she had *expletive* herself and wanted to be transferred to another facility and how she paid to be in this place and they are PAID to take care of her.

She hit the call button again, it now being nine-thirty. “We’re almost there Ray,” a head popped in to say, “just a couple more minutes.” and the door closed. Ray was now sobbing loud and I tried so hard to comfort her but I myself needed comfort at this time.

This was hell. This is what the hellfires felt like surrounding you and you clawing to get out into some fresh air but you’re smothering, suffocating from lack of oxygen. You could feel your limbs going numb, sweat now pouring from your forehead. The screams now constant whispers as the echoes were in your head, tapping you on the shoulder mocking you and laughing saying, ‘I’m still here.’ 

The door swung open and a loud sigh came from Laura, the oxygen was leaking in, slowly, it was now ten-fifteen. “We’re so sorry,” I allowed her words of explanation to drift off as they finally tended to Ray. She needed two nurses too since she had to be placed in bed with a lift. She had sat in her feces almost two hours and she was extremely sore by this time.

One nurse came to the other side of the curtain to tend to me and I sat with my gait belt in place ready to be lifted. Only one nurse was tending to me, I said nothing when she appeared with no gloves or gown and she proceeded to lift me. I twinged in pain, “Easy please, my hip, it’s still sore from my recent surgery.” With some assistance from me, she lifted me to standing, I tightly grabbed my walker, as she let go of the belt. I said, “Oh no, please, you have to hold the belt until I’m seated, this is how my femur was broken in the first place.”  

I whispered as tears were now rimming my eyes, “Please, please be gentle with me.” She took hold of the belt and as I was almost seated, she let go. I almost plopped onto the seat but my strength and my prayer placed me gently on the commode. She just stood there, waiting for me to pee. A watched clock never runs, but my floodgates opened from holding it in for hours!  

I had my own Kleenex because they offered me nothing. I was ready to be placed back in bed. Again, amazon woman lifted frail 88-pounder me by the gait-belt, I pivoted and sat on the edge of the bed, I told her I could make it from here, I was good, go finish up with Ray.

Ray kept telling them that I ‘Thtayed awake for her’  and that I wath her real fren. I smiled my tears away and lifted my legs onto the bed. The nurses bid us a good night and wouldn’t you know it, the meds from the charge nurse finally arrived. With meds down the hatch, we both let out a sigh of relief.

“We made it, Ray.”

“We did, didn’t we! You thtayed awake for me. Thank you!”

“Not a problem Ray, we’re friends.”

"That’th right, we are. Okay, goodnight.” She was out like a light before I even got settled into bed.

I had been texting my husband the entire time we waited for the nurses/aides/whatever. He was calling left and right to the front office, he as helpless as I was. “Goodnight, Ray,” I whispered as I shut off my little nightlight.

Matt. 14:14 “And Jesus went forth, and saw a great multitude, and was moved with compassion toward them, and he healed their sick.”

Nursing Home Saga Continues

2 Samuel 7:22 (NIV) "How great you are, O Sovereign LORD! There is no one like you, and there is no God but you."

The Saga Continues

The first night at the Home didn’t go too bad but morning came and I was aroused by the lights on Ray’s side being swung into motion. Ray had to be up and dressed because she went for dialysis three days a week. It took a lot out of her physically. She’d be gone until noon at which time she’d arrive back at the Home to eat lunch. Some of the time she would eat in the room because apparently, her trip took too much out of her to be social. She was placed in her recliner and left to eat.

By five in the morning I was awake and most of the time I asked if I could be helped onto the commode. “Sure Joni, just give us a minute.” I was trying to memorize the voices that would be helping me, this day it was Laura. The minute usually took more than twenty to come back for me. I was hungry and wouldn’t eat until nine. A small cup of water sat on my table and I’d take small sips. If I asked for them to refill the cup I brought from the hospital, it would take every bit of thirty-five minutes for it to be returned like it did the day before on my arrival. I was hesitant. And no, I was not on any restrictions of food and water.

I wanted to turn my television on a couple of times but wouldn’t you know it, the previous aid sat the ‘gait belt’ on the stand right in front of the television beam needed for the remote to connect and it would not turn on. I would just sit there, looking around, alone in my thoughts. The curtains were still drawn in the mornings and I awaited the sunrise. My meds would arrive about eight o’clock to eight-thirty and I asked the nurse that day, Bird lady, if she could kindly help me to the commode, the other nurse at six o’clock had not returned. “Well let me get you your meds first.” This nurse was one of the sweet attentive nurses and also in charge of the other nurses, the Charge Nurse. With gloves on, she handed me all of my pills in one cup. My chemo pills were supposed to be taken at different times, like before I ate (which one of them was on time) but the other was supposed to be thirty-minutes AFTER I ate. I was still hungry, no food tray in sight, except the empty one from dinner the night before, and still waiting to urinate. She offered me three packs of crackers to hold me off and often offered me an Ensure drink. 

I wasn’t getting a good feel of the place even after one full day in the confines of the home. At around 9:45 I was scheduled for my radiation; that meant I had to get dressed. The physical therapists came in before eight (way before breakfast) to see what I could physically do. The one PT was very robotic. I would try to make her laugh and she would just deadpan stare at me as if to say, ‘really? I’m trying to work here!’ While the occupational therapist, Kay, was perky and friendly and loved to laugh with me. Our laughter I know could be heard echoing down the hall. When I cried, she listened, she’d hand me the box of kleenex, and it was very comforting having someone in my room to communicate with.

I couldn’t do much like get dressed, heck I hadn’t showered in twelve days and have only been sponge bathed a couple of times at the hospital. My hair was a mangled mess, and what make-up was still left on my eyes ran down my face and I was hesitant to even look in the mirror. I would go to the radiation treatment in my t-shirt and flannel, nothing else but a blanket to cover me because the days were starting to get chilly.

I could only pivot so far on my right foot with the aid of the gait belt so I didn’t fall. The cold radiation slab wanted to break my back but the nurses were very accommodating and brought pillows, a cushion with a sheet, and warmed sheets to cover me. They didn’t treat me like a toxic zombie. They treated me like a patient. They were impressed with my progress since the first round of radiation, where I was brought in on a gurney. They said I was nothing short of a miracle when I appeared in the wheelchair, stood and pivoted. They had seen the x-rays of my break and were surprised I was at the pivoting stage already. My determination to go home kept me pushing forward but never overdoing the exercises I needed to set me free.

After the session was over my husband and I usually rolled down and sat at the window with the beautiful fountain surrounded by a lush garden and benches. There were pumpkins decorating the garden for either fall or Halloween. I lost track of time. We would then wait for the bus driver to return to take us back to the home.

The weather was damp, dreary and chilly most days, at the hospital, I was wheeled by gurney to the CC. At the Home, the community Ryde (bus) bus driver would come to my room and pick me up, unless a nurse rolled me to the sitting room. I was then taken to the Cancer Center. The driver would then come back and pick me up to take me back to the home. Any time I was not alone was a cherished moment for me. Anxiety had built for the Nursing Home very quickly. I would kid with the bus driver and ask him if he wanted to break me out of this place. He’d laugh as we slowly approached the Home. He would take me back to my room if my husband wasn’t there, otherwise hubby would wheel me back to the cubbyhole of a corner in room twelve. Let me state now, the other rooms were EVENLY divided between tenants. With doors open, I could clearly see in each room I passed as envy filled my empty gut.

As I said, to lighten my time in the places I deemed a hellhole, only because it wasn’t home, I used laughter to muddle through. One time being transported on a gurney to the CC I was wheeled to the first floor, past a gift shop, past a Subway (what torture!) and then past a waiting room then out the door into the swift breeze and the only-for-me sunshine. The CC was right next door to the hospital, too close for ambulatory service. I told the guys wheeling me, as I was covered in a white sheet, looking like a dead body being transported, that I would put the sheet over my head, then when I get to the waiting room, I’d jump up, screaming. The one technician laughed so hard he almost stumbled, the other one just shook his head. These guys, as well as anyone who came in contact with me, were getting to know me and my infectious sense of humor. Laughter and optimism kept me ALIVE!

The days were passing by as slow as extra thick maple syrup could be poured from a bottle. Granted the days were full from five a.m until we turned our lights out at 8:30 as we slept until something in the night called us to awaken.

Pss. 130:5  “I wait for the LORD, my soul doth wait, and in his word do I hope.”

The Story Continues: A Ray of Light

Ezek. 37:1 “The hand of the Lord was upon me, and carried me out in the spirit of the Lord, and set me down in the midst of the valley which was full of bones,”

A Ray of Light

Darkness had fallen upon the nursing home after my husband and son left, when from around the curtain to my left rolled in a woman. 

“Whatcha doin? My name ith Ray, I’m your roommate.”
“Hi Ray, nice to meet you.”
“What time do you go to thleep?” she said in her lispy voice.
“About nine.”
“Me too. Do you like it dark?”
“Yes, I don’t mind the dark,” I said with a smile.
“I like the curtainth clothed, do you?”

Ray was a bit older than me at sixty-three but had the mind of a child. I’ll say a fifteen-year-old because she did have some intelligence as I got to know her over the next ten days. She too was immobile and needed a mechanical lift to get her in and out of bed. She had bulging blue eyes and the electric smile of innocence. Her gray hair was manly, tight and straight but well kept. She told me over and over how she loved purple and everything purple as she pointed to her pajamas. She would be one of the elements of light that God shined down on me. 

The first night I was there my dinner came at seven-thirty. To me, it was almost time for bed but I was hungry. I had not eaten since lunchtime (twelve o’clock) that day. I think my first meal was Salisbury steak with a biscuit and mashed potatoes and a small glass of water. Water, water was scarce for the next couple of days.

I brought with me a big thirty-two-ounce cup of water from the hospital. The hospital gives them to patients and well since I was so toxic, it isn’t like the cup could be reused. I took little sips because I did not look forward to peeing in this place. I could not yet put the dinner tray over both of my legs, so it was at an awkward slant over my right leg. The trauma of anything touching my wounded leg scared me to bits. I didn’t cover it in a blanket because the slightest brush of anything left me with a tinge of pain. 

My medication was due at seven and had not yet arrived and at eight-thirty when Ray pushed the button for the nurse, I asked when I would be receiving my meds. The young nurse said the ‘pill tray’ was on its way down the hall. I asked if she could help me to the commode after she was done with Ray and she said yes, finishing up placing Ray in bed with the ‘lift’, she said, “I’ll be right back in a minute.” And she left the room. 

She came back to the room at nine-fifteen with another young nurse and they were both wearing yellow protective coverings and gloves, in one hand was a gait belt. The gait belt was placed around my waist and it was used to help lift my tiny eight-eight pound body. One nurse to my right and one to my left hand, both had hands gripped on my pained hips in a two-foot space, they lifted. I always counted so we could be in sync. One, two, three, lift, small grunt, and pivot. Imagine three women in a two-foot space trying to pivot. The gait belt was a necessity so as to avoid liability in anything breaking.

“Please, hold the belt until I’m completely seated. This is how my left femur became broken, a sloppy seating on the commode.” Tears began running down my cheek as the tragic incident flooded my mind. Embarrassment, pain, vanity, all danced around in my head as I was gently seated. They removed their gowns and left the room for me to urinate. I was pushing the nurses' call button as fifteen minutes on the commode was leaving my limbs numb. They returned, put on a new set of yellow gowns and gloves, and lifted me, pivot, and I sat on my bed and was ready to just sleep. I jokingly thanked them for the dance. It was my sense of humor and personality that kept these young ladies smiling as they took care of me for the next week.

Curtains were drawn lights out. I cried quietly because I honestly was afraid to be alone. My husband had spent the ten days at the hospital with me and this place barely had sitting room for my two guests. I was alone, except for my prayers and my roommate, Ray.

“You okay?” I hear in the darkness, it was Ray.
“Yeah Ray, I’m just lonely.”
“I get like that thumbtime. Itth okay to cry. What time do you get up?”
“About five for me.”
“Yeah, me too. I go to dialithith.” I drifted off a little as she continued talking, ever so lightly, but it was comforting in the darkness. “Okay, goodnight.”
I opened my eyes a second and whispered, “Goodnight, Ray.”

I was startled awake at about one o'clock as the bright lights came on and Ray was being tended to. I called out, “Can someone get my pain meds for me and I need to pee, too.” 
“Sure Joni, let us take care of Ray first okay?” 
Okay, thank you.” 
She went and got another nurse after calling down for pain meds for me. They gowned and gloved up and came around the curtain to help me. 

I was on twelve-hour oxysomething but allowed ‘2 booster pills’ for pain if needed. And being startled awake and moved around, I certainly needed the pain medication still at this juncture of healing. It had only been eleven days since surgery. The pill lady was a different nurse, she was called the ‘charge nurse’, I guess because she was in charge of the pills? Maybe the nurses too, I don’t know. She took my vitals while she was there at two o'clock so she didn’t need to wake me at three to do it all over again. Everything normal (except me) and with a ‘I hope you sleep well’ after shutting the lights off and closing the door, she was out of the room.

“That feelth better,” I hear Ray say on the other side of the curtain.
“Yeah, it sure does,” I whispered.
“Okay, goodnight.” 
“Goodnight Ray”

Jer. 29:11 “For I know the thoughts that I think toward you, saith the LORD, thoughts of peace, and not of evil, to give you an expected end.”