Sunday, February 17, 2019

Poetry Sunday: We Are One

John 20:29 “Then Jesus told him, ‘Because you have seen me, you have believed; blessed are those who have not seen and yet have believed.’” 

We Are One

I am the branch and He the vine
or the other way around 
so intertwined.

I am the shadow He is the Light
I fall to the ground without
                                         a sight.                                          

I am the wick and He the spark
illuminating space there is
no dark

I am without as He is within
breathless purity leaves
                                       no sin.                                        

I am the bride, He is the groom
loving relationship in
full bloom.

I am the vine, He the branch
integrated as One
mortal chance.      

I am the branch and He the vine
communal spirits 
natural design.    

Friday, February 15, 2019

Crossroad to Confusion

Exodus 4:11-12 (NIV) “The LORD said to him, ‘Who gave human beings their mouths? Who makes them deaf or mute? Who gives them sight or makes them blind? Is it not I, the LORD? Now go; I will help you speak and will teach you what to say.’” 

Okay, so here I am reopening my blog writing again and you might be asking yourself why. Well let me tell you my story, yet again. The Big C came into my life on a black horse carrying with it fear and uncertainty. That was January 25th, 2017 when I got the official diagnosis. Now in all of my research, I learned that the C cells were awakened seven to ten years earlier when they were as small as a dust mote and no possible sign of them being seen even with the finest equipment in the 21st century!

I’m not going to rehash the entire story, you can read it here with this link and all of 2017 if you wish but fast-forwarding to 2019, after I was told I was stage 4, that the C cells had metastasized, meaning they spread to my bones, my liver and I have no clue where else. Doctors are funny that way, they tell you snippets of what THEY want in little increments of fear, so you stress and worry yourself, literally to death. But I have something no doctor has and that is FAITH in the Lord my God!

Yes, I know some doctors have faith but I can assure you, they think they are doing God’s work for Him. Maybe they are and maybe they are not, that is not for me to judge. They are NOT the God I listen to. In my heart and my soul, no doctor’s fear penetrates me so much that I override what the Lord tells me and says for me to do.

Around the time of my femur break, I was placed on (OC) Oral Chemo. That is not the same as chemotherapy, being hooked to a machine pumping poison into your system. This poison targets the estrogen positive cells going crazy in my body and attacks the little wanderers in other places.

My markers were extremely high and the doctor really didn’t feel like this OC was going to work but after a month in the hospital, the pills, often not taken on a regular basis until I got home from the hospital, were showing signs of working. The oncologist who visited me in the hospital for the ten days that I was there kept pushing for me to do the port IV Chemo which I AM firmly against. I know it, God knows it, the doctors know it! But Dr. Biscuit, a colleague of my current Onc., was astounded that the little time I was on the OC, my tumor was shrinking and the markers were sliding DOWN the sliding board at record speed!

Markers are blood cell counts. White, red, and C cells. They tell the doctor what is going on inside the body. Dr. Biscuit didn’t want to agree with me that my strict diet adherence is what made my body accept the OC so well when thousands of women across the country were falling sick with vomiting, skin problems, diarrhea, and other side effects. I was an exemplary guinea pig if you will.

Miracle after miracle, my markers, month after month was going down. August-September they were at an all-time high of 2711 dropping to 350 by November. What my doctor failed to tell me was that December and January there was a slight increase in my C cells, not my White and Red ones, so I guess it didn’t draw concern at that time.

During those months I thought I was home free. My current oncologist told me to eat what I wanted to get my weight up and like a fool, I LISTENED to the doctor! As I sit here in February all the junk food, meat, dairy, carbs all toxins I hadn’t had for almost two years were in my body doing a little dance, unbeknownst to me, with my cells! I weigh the same that I weighed when I entered the hospital back in September. So the doctor was wrong in telling me to eat what I want.

I was told to stop my supplements back in September but was allowed my Vitamins A, B12, C, D3, and E. I stopped all supplementation except two that I felt were essential, Green Tea/Curcumin, turmeric/black pepper. The doctor on many occasions LAUGHED at me and made fun of my supplementation. I let it roll off my back because I took jabs at his bald head, so touché.

Also in these months, I’ve been attending Physical Therapy to regain the mobility that I lost when my femur popped out of my leg. Yeah, it was not a simple break, it was a total disaster and they really didn’t think I’d walk again after repairing the damage, but again, miraculously, I PROVED THEM WRONG! I’m walking with a walker and often with just my cane! 

The other day was my oncologist visit. It was the first time they’d seen me NOT in a wheelchair. The one assistant squealed like a little girl in amazement! 

“JONI! What’s this? You’re walking!” Squeals of delight and smiles from the other nurses as I passed and little murmurs of “Way to go!” could be heard as I was led into the docs office. Even the doctor smiled and said, “You’re looking good!”

In the room, the talk began, the banter if you will. Him making fun of me and me listening to his rhetoric on chemotherapy and how people die without it. THIS is when he mentioned my C cells rising. The OC had done its job and can do no more. This is also the time, six months later, that he tells me the OC was only supposed to work for three months. Here I was five-six months out, still looking good for a stage 4 patient. My white and red were ‘plateauing’ as he put it, an evening out.

I got home from the visit sad, not my peppy self when the phone rang as we walked in the door...

“The doctor needs to see you again. Your markers are up.” PA says to me. I said a Wednesday visit would be okay. 

I broke. The tears that had been stored up for a few months all unleashed when the floodgates opened. I had been doing so good, I’ve been soaring, walking, healing, feeling great and BAM! Slap me in the face kind doctor! 

I was angry. For the first time in my spiritual life, I was angry at God! I lost two children and didn’t feel the anger that swelled up inside of me at that very moment. I was not as well as I was led to BELIEVE I was. 

“WHY,” I cried, “why is all of this happening again. I just wanted a break, a reprieve from the stress of healing! I thought I was. I was being misled down a path?” The tears filled the trashcan to overflowing with Kleenex.

That night I did what I always do, I prayed. I apologized first and asked what He’d have me do. No answer. In the morning on Thursday, I prayed as I always do and talked with Him. I had said in jest that if it snows on Wednesday (or snow inhibiting my visit) then my answer was to just say no, to chemo! I looked at the weather and while snow was forecasted for Friday and Saturday, three to four inches, it was sunny and clouds all next week. A deep sigh left me still praying and wondering. What was I to do?

I was told by the docs office to not take any more pills and they called the pharmaceutical place and stopped delivery of further shipments. Great, I’m dangling out here, alone. HA! The jokes on them! I AM NEVER ALONE! I have an Almighty God! An intense faith in my spiritual life! It surpasses anything in this physical realm! I know my friends think I’m crazy, surely the doctor does too, but I have an AMAZING Healer in God! I cannot and will not lose my faith!

I woke Friday morning feeling eerily good. Two days in a row of PT wore me down, the doc visit shredded me to pieces and here I was Friday morning, snow blanketing the fields, and I’m feeling pretty good. Wednesday I tossed the drugs in the trash and resumed right then and there my supplementation. No more meat, back to the strict protocol that OBVIOUSLY worked FOR me and not against me!

On to reading my morning devotional emails. I was going to read ‘Verse of the Day’ first but I inadvertently hit Encouragement for the Day. In it was a story of a woman who had in-vitro fertilization and was told by her doctors that these last four embryos were ‘inferior’. In his YEARS of study, knowledge, and experience told these hope-filled parents that inferior embryos don’t ‘hatch’, so to speak.

She was on the sonogram table listening to THREE HEARTBEATS! From the email: “As I lay on that table, looking at the glowing screen, those three fluttering heartbeats told me what a doctor had labeled “inferior” was exactly the kind of thing God uses to accomplish His will.
Our doctor briskly entered the room, breathless and looking perplexed. “I really don’t know how this happened!” He exclaimed.”

What message was I, little Joni, getting from this? Let’s look at the accompanying scripture and you’ll see/read for yourself.

TRUTH FOR TODAY: Deuteronomy 31:6, “Be strong and courageous. Do not be afraid or terrified because of them, for the LORD your God goes with you; he will never leave you nor forsake you.” (NIV)

Exodus 4:12, “Now go! I will help you speak, and I will teach you what to say.” (NCV)

I closed down my writing because I thought I was done, I could move on. As you see...God is not done with me yet! A look at next weeks weather? A 70% chance of snow on Tuesday. 


All praise and Glory to a Wonderful and Amazing God! 

Just in case you were wondering, this was the other message received today. Our God is an AWESOME God! From Charles Stanley: In Touch
Pss 23:1-6

Thursday, February 14, 2019

Happy Valentine's Day: Another Year

Pss. 116:1 "I love the LORD, because he hath heard my voice and my supplications."

Another Year...

It was here and then gone
the year that was then wasn't
We started off on a slippery slope
the days of does and doesn't.

I try to make some sense of it all
but memories mesh together
A sunny day here, a rainy one there
all measured by crazy weather.

Then there are days filled with pain
coughs, sniffles, and sneezes 
your hand in mine, memory blind
a warm soft hug appeases.

We've made it through some blizzards
together all seemed so easy 
fierce lightning storms and raging winds
with love, it passed as just breezy.

Here we stand once again
confusion trying to take hold
but we're too strong to let it win
Our souls should stand so bold! 

This Valentine's day remember
as all the ones in the past
The year might soar in a whirlwind
but it's our enduring love that lasts! 

To my honey! 

HAPPY VALENTINE'S DAY!