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2 Sam. 23:4 “And he shall be as the light of the morning, when the sun riseth, even a morning without clouds; as the tender grass springing out of the earth by clear shining after rain.”

The days leading up to...

The days leading up to a chemo treatment are usually filled with anxiety. I try my meditation, my prayers, my refocusing of daily chores and hobbies, but still, I find I’m normal, in so much that, anxiety leaks through. 

I’ve been having good days filled with a lot of pain at night on my right thigh. I guess this is normal too, one of those lovely side effects. I try to understand what I signed up for but I honestly have no clue. I know I signed up for intravenous Herceptin, with no port, and it has side effects. What does it do? Well, one thing it doesn’t do is cure the Big C! It kind of sings it to sleep. 

Why do people assume that chemo is a cure? Do you not see the commercials from the ACS begging for money to help them FIND a cure? Sure they have treatments to prolong your life, but cure? THERE IS NO CURE! Just had to shout that out to those who are reading.

Here are the  COMMON side effects of Herceptin:

Diarrhea - nope
redness or irritation at injection (IV) site - well duh all needles have some pain/redness
muscle/joint/back pain - YES
stomach or abdominal pain - somewhat
Headache - not really
sleep problems (insomnia) - nope
nausea and vomiting (may be severe) _ thank God NO
weight loss - I sure hope not! Hard enough finding clothes now!
Rash - kinda
altered sense of taste - is that what that is?
mouth sores - nope
loss of appetite - still eating like a pig!
Tiredness - most definitely
cold symptoms such as stuffy nose, sinus pain, sneezing, or sore throat. - Runny nose, does that count?

Tell your doctor if you have serious side effects of Herceptin including:

bone pain,
increased coughing,
swelling of the hands/ankles/feet,
sudden unexplained weight gain,
unusual tiredness,
severe headache,
tingling or numbness (e.g., in the hands, feet, leg),
mental/mood changes, - going through menopause, so yes, before Herceptin days.
fast or pounding heartbeat, and
easy bruising or bleeding.

I don’t know the difference in BONE pain and muscle pain, I somewhat have an idea after breaking my femur. But…

THIS is the other DRUG he wanted me taking and I refused. The COMMON side effects alone scared the pants off of me! 

Common side effects of Femara include:

hot flashes,
warmth in your face or chest,
hair loss,
joint/bone/muscle pain,
tiredness,
unusual sweating or night sweats,
nausea,
diarrhea,
dizziness,
trouble sleeping,
drowsiness,
weight gain,
weakness,
flushing (warmth, redness, or tingly feeling),
headache,
constipation,
numbness/tingling/weakness/stiffness in your hand or fingers, or
pain in your hand that spreads to your arm, wrist, forearm, or shoulder.


I would hate to see what the more serious side effects are! When a trusted doctor tells you the side effects are a lot like menopause I beg to differ!!! Unless I’m a rarity among women!

This is MY choice of estrogen blocker that I showed him last Wednesday to see if he’ll ‘allow’ it in my regimen. I’m not giving him a choice.

DIM partial list of side effects:

This is not a complete list of side effects and others may occur.

One of the supplements used for estrogen dominance is diindolylmethane, or DIM, which is a natural plant-based chemical found in many cruciferous vegetables. The effects of cruciferous vegetables, such as cabbage, broccoli, and Brussels sprouts, are being studied as a treatment for cancer.[1] DIM works to create a healthy balance of estrogen and testosterone in your body and is available in capsules or tablets.

DIM Supplement warnings:
If you have a hormone-related condition, make sure to discuss DIM with your doctor, because it can sometimes block estrogen activity. Taking larger doses can be unsafe; possible side effects of using DIM supplements include headaches and nausea.

DIM Side Effects and Interactions
DIM is considered to be safe when consumed from natural sources at doses 100-200mg daily. Taking larger doses such as 600 mg each day, may cause side effects such as headaches, upset stomachs, and can cause reduced sodium levels in some people

TO ME, DIM is much safer than Femara and does the same thing in a natural way, albeit a tablet form. Yes, I’m still on a plant-based regimen! 

The Day of Dread and Doom came and looking for a chair in the chamber was almost impossible, filled with souls getting poison pumped into their systems, bald and aging, wrinkled and sagging. And then there was me with a puzzled look on my face wondering what on earth I was doing there.

The quick session was over (thirty minutes) and I was promised this one would not be as bad as the first session with the chills and pain. It was a lie as I arrived home, I went right to the bedroom cringed in pain, popping pill after pill to try and relieve some of this tension-wracked pain nursing my body and feeding the angst and desperation I never knew before.

Three hours of crying and wriggling in pain, I finally fell asleep. I woke but didn’t want to. I hurt like I’ve never hurt before. Eight years of arthritis and no meds, pain bearable but now, this pain was exhausting and unending. My mind was not accepting this. I did not in no way shape or form want to finish my life out in this kind of angst that is driving my body into the grave. My mind, almost gone. Is this what menopause is like? I don’t think so. Thank you, doctor, for bending the truth YET AGAIN!

Oh and my DIM supplement? He laughed in my face and offered me up another drug to kill me with less side effects. I said no ten times but his ears were obviously clogged so I appeased him, ok doctor, maybe next visit in three weeks.

It has been almost one week and I still feel like the crab on the ocean floor, sucking down the toxic poisons left behind. I still have my hard shell, I can still crawl and be plucked out of the water at any moment but for now, my body is filtering poison through my system and it’s not a pretty sight. Have you ever opened a crab up? Have you seen the filters and the yellow gunk that you’re told NOT to eat of the crab, just the meat? I don’t even have meat left to eat. I am a shell. My yellow gunk is on display. I have maintained my body weight since September, so I know I'm still fighting! 

My husband and son see this change in me; at their wit's end and hubby being sick with walking pneumonia, this isn’t going to fare well. Mother-in-law came out and I feel like she thinks this chemo is the cure-all I need and is good for me but then not after I tell her how it makes me feel. But then again, no one has a clue of the pain and isolation chamber I feel locked into.

I was strolling along enjoying life. Going to physical therapy three days a week when suddenly the rug was pulled out from under me and I fell, hard. Now, I get to the outside world, if I’m lucky, every three weeks for chemo. A doctor visit here and there. A stare out the window, a walk to the back door, and life going on in every way without me. I’m a shell with two eyeballs looking left and right and wondering, is someone going to get me out of here? 

I wake in the morning and don’t like who I see. I’m filled with anger, disgust, discouragement, hate, bitterness, pain and misery; all of these things are foreign to the me who just a month ago was enjoying the physical therapy, loving life and feeling God deep within every step I took. Now...it’s only fitting that during Lent, the season that is being swallowed up around me, I should be tempted and filled with everything the dark lord stands for. 

I’m here...waiting for the crab net to come swooping down. Run along now...it’s not a pretty sight.

Pss. 95:8 “Harden not your heart, as in the provocation, and as in the day of temptation in the wilderness:”

I’m hanging in here, Lord. Don’t leave me dangling...

Isa. 58:8 “Then shall thy light break forth as the morning, and thine health shall spring forth speedily: and thy righteousness shall go before thee; the glory of the LORD shall be thy reward.”

Crossroad to Confusion

Exodus 4:11-12 (NIV) “The LORD said to him, ‘Who gave human beings their mouths? Who makes them deaf or mute? Who gives them sight or makes them blind? Is it not I, the LORD? Now go; I will help you speak and will teach you what to say.’” 

Okay, so here I am reopening my blog writing again and you might be asking yourself why. Well let me tell you my story, yet again. The Big C came into my life on a black horse carrying with it fear and uncertainty. That was January 25th, 2017 when I got the official diagnosis. Now in all of my research, I learned that the C cells were awakened seven to ten years earlier when they were as small as a dust mote and no possible sign of them being seen even with the finest equipment in the 21st century!

I’m not going to rehash the entire story, you can read it here with this link and all of 2017 if you wish but fast-forwarding to 2019, after I was told I was stage 4, that the C cells had metastasized, meaning they spread to my bones, my liver and I have no clue where else. Doctors are funny that way, they tell you snippets of what THEY want in little increments of fear, so you stress and worry yourself, literally to death. But I have something no doctor has and that is FAITH in the Lord my God!

Yes, I know some doctors have faith but I can assure you, they think they are doing God’s work for Him. Maybe they are and maybe they are not, that is not for me to judge. They are NOT the God I listen to. In my heart and my soul, no doctor’s fear penetrates me so much that I override what the Lord tells me and says for me to do.

Around the time of my femur break, I was placed on (OC) Oral Chemo. That is not the same as chemotherapy, being hooked to a machine pumping poison into your system. This poison targets the estrogen positive cells going crazy in my body and attacks the little wanderers in other places.

My markers were extremely high and the doctor really didn’t feel like this OC was going to work but after a month in the hospital, the pills, often not taken on a regular basis until I got home from the hospital, were showing signs of working. The oncologist who visited me in the hospital for the ten days that I was there kept pushing for me to do the port IV Chemo which I AM firmly against. I know it, God knows it, the doctors know it! But Dr. Biscuit, a colleague of my current Onc., was astounded that the little time I was on the OC, my tumor was shrinking and the markers were sliding DOWN the sliding board at record speed!

Markers are blood cell counts. White, red, and C cells. They tell the doctor what is going on inside the body. Dr. Biscuit didn’t want to agree with me that my strict diet adherence is what made my body accept the OC so well when thousands of women across the country were falling sick with vomiting, skin problems, diarrhea, and other side effects. I was an exemplary guinea pig if you will.

Miracle after miracle, my markers, month after month was going down. August-September they were at an all-time high of 2711 dropping to 350 by November. What my doctor failed to tell me was that December and January there was a slight increase in my C cells, not my White and Red ones, so I guess it didn’t draw concern at that time.

During those months I thought I was home free. My current oncologist told me to eat what I wanted to get my weight up and like a fool, I LISTENED to the doctor! As I sit here in February all the junk food, meat, dairy, carbs all toxins I hadn’t had for almost two years were in my body doing a little dance, unbeknownst to me, with my cells! I weigh the same that I weighed when I entered the hospital back in September. So the doctor was wrong in telling me to eat what I want.

I was told to stop my supplements back in September but was allowed my Vitamins A, B12, C, D3, and E. I stopped all supplementation except two that I felt were essential, Green Tea/Curcumin, turmeric/black pepper. The doctor on many occasions LAUGHED at me and made fun of my supplementation. I let it roll off my back because I took jabs at his bald head, so touché.

Also in these months, I’ve been attending Physical Therapy to regain the mobility that I lost when my femur popped out of my leg. Yeah, it was not a simple break, it was a total disaster and they really didn’t think I’d walk again after repairing the damage, but again, miraculously, I PROVED THEM WRONG! I’m walking with a walker and often with just my cane! 

The other day was my oncologist visit. It was the first time they’d seen me NOT in a wheelchair. The one assistant squealed like a little girl in amazement! 

“JONI! What’s this? You’re walking!” Squeals of delight and smiles from the other nurses as I passed and little murmurs of “Way to go!” could be heard as I was led into the docs office. Even the doctor smiled and said, “You’re looking good!”

In the room, the talk began, the banter if you will. Him making fun of me and me listening to his rhetoric on chemotherapy and how people die without it. THIS is when he mentioned my C cells rising. The OC had done its job and can do no more. This is also the time, six months later, that he tells me the OC was only supposed to work for three months. Here I was five-six months out, still looking good for a stage 4 patient. My white and red were ‘plateauing’ as he put it, an evening out.

I got home from the visit sad, not my peppy self when the phone rang as we walked in the door...

“The doctor needs to see you again. Your markers are up.” PA says to me. I said a Wednesday visit would be okay. 

I broke. The tears that had been stored up for a few months all unleashed when the floodgates opened. I had been doing so good, I’ve been soaring, walking, healing, feeling great and BAM! Slap me in the face kind doctor! 

I was angry. For the first time in my spiritual life, I was angry at God! I lost two children and didn’t feel the anger that swelled up inside of me at that very moment. I was not as well as I was led to BELIEVE I was. 

“WHY,” I cried, “why is all of this happening again. I just wanted a break, a reprieve from the stress of healing! I thought I was. I was being misled down a path?” The tears filled the trashcan to overflowing with Kleenex.

That night I did what I always do, I prayed. I apologized first and asked what He’d have me do. No answer. In the morning on Thursday, I prayed as I always do and talked with Him. I had said in jest that if it snows on Wednesday (or snow inhibiting my visit) then my answer was to just say no, to chemo! I looked at the weather and while snow was forecasted for Friday and Saturday, three to four inches, it was sunny and clouds all next week. A deep sigh left me still praying and wondering. What was I to do?

I was told by the docs office to not take any more pills and they called the pharmaceutical place and stopped delivery of further shipments. Great, I’m dangling out here, alone. HA! The jokes on them! I AM NEVER ALONE! I have an Almighty God! An intense faith in my spiritual life! It surpasses anything in this physical realm! I know my friends think I’m crazy, surely the doctor does too, but I have an AMAZING Healer in God! I cannot and will not lose my faith!

I woke Friday morning feeling eerily good. Two days in a row of PT wore me down, the doc visit shredded me to pieces and here I was Friday morning, snow blanketing the fields, and I’m feeling pretty good. Wednesday I tossed the drugs in the trash and resumed right then and there my supplementation. No more meat, back to the strict protocol that OBVIOUSLY worked FOR me and not against me!

On to reading my morning devotional emails. I was going to read ‘Verse of the Day’ first but I inadvertently hit Encouragement for the Day. In it was a story of a woman who had in-vitro fertilization and was told by her doctors that these last four embryos were ‘inferior’. In his YEARS of study, knowledge, and experience told these hope-filled parents that inferior embryos don’t ‘hatch’, so to speak.

She was on the sonogram table listening to THREE HEARTBEATS! From the email: “As I lay on that table, looking at the glowing screen, those three fluttering heartbeats told me what a doctor had labeled “inferior” was exactly the kind of thing God uses to accomplish His will.
Our doctor briskly entered the room, breathless and looking perplexed. “I really don’t know how this happened!” He exclaimed.”

What message was I, little Joni, getting from this? Let’s look at the accompanying scripture and you’ll see/read for yourself.

TRUTH FOR TODAY: Deuteronomy 31:6, “Be strong and courageous. Do not be afraid or terrified because of them, for the LORD your God goes with you; he will never leave you nor forsake you.” (NIV)

Exodus 4:12, “Now go! I will help you speak, and I will teach you what to say.” (NCV)

I closed down my writing because I thought I was done, I could move on. As you see...God is not done with me yet! A look at next weeks weather? A 70% chance of snow on Tuesday. 

All praise and Glory to a Wonderful and Amazing God! 

Just in case you were wondering, this was the other message received today. Our God is an AWESOME God! From Charles Stanley: In Touch
Pss 23:1-6

January 4th - Fill In the Blank

Rom. 3:23 “For all have sinned and fall short of the glory of God.”

January 4th, 2019

Today arrived which meant more physical therapy: step up, step down, up/down 20 times right foot, 20 times left foot. Then the Cane Walk, 4 laps around the fitness area with my CANE, and then more exercises. I remember my doctor asking me once if I thought this ‘physical therapy’ stuff is working and with my mouth almost to the floor I said YES! I could not have gotten this far alone!

I can almost taste taking my walks again. I look out the window and visualize the event. The weather being in the upper forties for over a week now, melting snow with puddles that mimic swimming pools, and next week being a repeat with a couple of fifties in there make me wonder if this is the calm before the storm. If it's not, then I’m thinking that stupid groundhog got his months mixed up. 

My physical therapy is moving right along and the weather is being generous in that I don’t need to wear numerous layers of clothing. The new year snuck up on me and caught me preoccupied with things other than writing and finishing my story. So I begin the New Year filling in the blanks. 

This month also marked the arrival of chickens. CHICKENS, can you believe it? They might have arrived in December but again, my brain and a timeline are not in sync yet. I’ve lived out here on this closed down former Turkey Ranch for ten years now and have seen some of the strangest things!

I’ve had a fox walk past my window, I’ve had baby raccoons curl up in the corner of my steps (my son has video proof!), I’ve had what looked very much like a groundhog just mosey on up the path outside my window, I have had close encounters with the voles tearing up my lawn, I have eight pigeons that currently live in the Old Mill tanks, and a stray labrador appeared just after my father’s passing and is still here, and the list goes on and on. Did I mention my cardinal reappearing who hasn't been seen since last spring?!?!

Wild Turkey’s have wandered these cornfields for years but disappeared when the Turkey Ranch was active a few years ago, they knew slaughter when they smelled it and stayed away! They’ve returned in full force, I have about ten huge birds that visit my bird feeder as well as chickens! My son tells me I have to watch what I wish for. He remembers me for years saying I wanted chickens, then since my illness began I wanted free roaming ones. Then here they come, beautiful as ever, appearing out my window on a warm day, pecking at the birdseed meant for the birds that the squirrels have taken a liking to; I don’t mind at all. These are the highlights of my Days of Healing! 

They disappeared when we had a freeze, high wind, and snow, but hubby says he still hears the rooster crowing somewhere down the road. Now I want them back! I grow attached to my animals. I’m a nature lover at heart, animals are my friends, plants, trees, rocks, and butterflies are my meditative love. God is the internal Spirit that bestows these things upon me and I LOVE them as He’s asked me to do, what can I say.

Zech. 4:6 “Then he answered and spake unto me, saying, This is the word of the LORD unto Zerubbabel, saying, Not by might, nor by power, but by my spirit, saith the LORD of hosts.”

Zech. 4:8  “Moreover the word of the LORD came unto me, saying,” 

Rejoice and be happy, write and tell your story, rest for a season, share for a reason, and know, I am the Lord your God, with me NOTHING is impossible! I go in peace!

All praise and Glory to God!

Rom 8:6 “For to be carnally minded is death; but to be spiritually minded is life and peace.”