Showing posts with label survive. Show all posts
Showing posts with label survive. Show all posts

Monday, March 04, 2019

A Dove Tale

In Texas, my dove visits

Josh. 1:9 "Have not I commanded thee? Be strong and of a good courage; be not afraid, neither be thou dismayed: for the Lord thy God is with thee whithersoever thou goest."


A Dove Tale

I know my friends think I’m crazy, that’s a given. I’m always ranting and babbling about holistic and alternative treatment as if it is the Holy Bible of the medical world. I sure hope I never gave that impression. The first impression I like to leave you with is for you to go to God in prayer and see what He has to say about your situation. He DOES listen! He WILL answer!

Now the second thing I’d like to leave you with is timing and patience. We all go to prayer with wants and needs, OUR wants and needs. While God is all about our wants and needs too, with Him, it is all about in HIS time and not ours. Meaning sometimes we’re not going to like the answer we receive, or when we receive the answer.

When I was first diagnosed I went to Him first and listened to Him. Now you’re probably saying, “And He told you what you wanted to hear, right?” Well shockingly enough, yes and no. I had no intention of doing port chemo and when God gave me an option, alternative treatment, I listened but went for a second opinion from a doctor. It was obvious no doctor was going to hear me like God, or pay my thoughts and opinion one piece of mind. Nope, they were all about drugs and money, point blank! 

So, on I went for a year and a half listening, praying, loving, learning and healing. During this time I really tuned to the animal and plant kingdom. Whether it was my dog (who was still alive at the time), the stray dog who is still here four years after wandering onto my property, or the birds and squirrels. They are all a part of God’s kingdom and the kingdom I live in most of the time. Man has let me down on major levels throughout my life, so I have to have someone, some THING to turn to, I trust the animals. The squirrels, the Cardinals, the Doves, the Owls, the deer, the wandering wild turkey, and the Falcons; the signs, the wonders. There are more things I look for, if you can imagine, from God himself. I listen, good or bad, I have to listen, this is who I am, this is who God shaped me to be. He didn’t fashion me out of false clothing that I put on every day to prance around and show you, no I received the straight up Value Village clothing to walk around in and proudly display because this is who God created in ME!

I was recently hit with oncologist lies. I don’t know what to do with that. This is my third oncologist (I don’t have a variety out here in the middle of nowhere) so I go where God leads me. This doctor is doing an okay job, but he likes the fear tactics and scaring me and in my weakened state, I fall prey to what he offers. I’m alone and abandoned out here, I only have my husband, son, and my God. Yeah, that’s a lot to me! Besides my Spiritual Family, everyone else is just voyeurs along for the ride. 

1 Peter 5:8 “Be alert and of sober mind. Your enemy the devil prowls around like a roaring lion looking for someone to devour.”

The Big C is nothing to mess with. I know in the deepest depths of my soul that this can be beaten on an alternative level but funds are needed for that route, funds I will never hold in my hand for say Vit. C therapy, Cannabis, UV therapy, a chiropractor even and so many more treatments but out of my reach. So I have to go with what I’m offered, cannot afford, but is covered.

The doctor wrongly assumed that by scaring me back into his office a week after my visit that he’d devour me with fear and I’d jump into Chemotherapy, the port chemo that he’s been pushing all along.  He hurried me in to tell me my markers had gone up, and unknown to me, had been going up all along, he LIED! He lied when he told me they were going down, they went down once, in Oct., then went up in Dec. Jan. Feb.! And here I was two visits in February. Of course I’m going to be scared. I trusted him! 

He didn’t know that his Navigator nurse had already canceled my oral chemo from being delivered. She had called the day of my blood test and told me to stop taking the toxic drugs and that is what I did, the doc was not prepared for me to say NO to port chemo. He wasn’t prepared for me to ask what the rush was and why couldn’t it have waited until my next scheduled visit. He mumbled and babbled but I was not ready to completely give up, just meet him on MY terms, not his. I agreed to the intravenous chemo drug Herceptin. Toxic and debilitating and I knew I’d need prayer and guidance on this one. Lord, don’t fail me now. This to me is not a courageous route. They won.

I agreed only if, by my next scheduled visit, my markers were still rising. I told him I’d wait around for the results and not wait to get home to be scared. I’m also going to ask for a printout of the graph that visually shows me my red, white and C cell counts. He didn’t know the nurse had one printed for me obviously because again he lied and said my red and white cell counts were rising also. I hold the graph in my hand and it shows no such thing. My red and white cells were still dropping. So we’ll wait and see. Do I go on or do I TRY and find another doctor. I can’t keep toying with my health! I run out of choices.

Prayer upon prayer, tear upon endless tear, decisions to be made, give up, give in or trudge on. My doctor also assumed I meant that I’d sign on for this drug and it would be in my arm like the next day. I said, no, I want another blood test before my hookup and he said he needed to schedule a test to check and see if my heart can handle this toxic drug they’re going to pump into my veins. I told him I work on my husbands' work schedule, not anyone else’s. We NEED food to eat and he NEEDS to work, I have to finish up my Physical Therapy and I’d see the good old liar in three weeks.

In these weeks I’ve prayed. I had to weigh the pros and cons. I shared with my husband and son and listened to their opinion, I prayed, because I already knew what ‘I’ wanted but I’d listen for God…..

I woke on a cold brisk morning, my feeder aflutter with my usual winter birds. For a week or two, a female cardinal had been hanging out with the sparrows and I asked her, “Where is Red? You get him back here!” Red is the male cardinal who only makes special appearances since he was chased away by the Blue Jay family. I needed to see him, I needed my ‘other’ family and that is the ones of the animal kingdom. 

On this morning he was hard to miss, his rich red color against the white snow as he scurried around for some stray seed. It’s funny when they seem to stop and look right at you, and slant their little heads, then go on about their business, but sure enough, Red made his appearance this day, no sign of Bell his lady friend.

In the following days as I waited to discern answers to my prayers, I enjoyed the bunnies at the feeder in the morning before the sunrise. Four bunnies, all of which I thought had moved on because I hadn’t seen them all winter. Tracks in the snow told me they were around but I never saw them until this morning when I turned on the outside light to see if it had snowed. To my surprise, there was snow AND bunnies! As the sun came slowly cresting over the horizon on this rare event of a day, (we never see the sun these frigid, gloomy days of winter) my birds along with the squirrels all started making their appearance.

This day was different, I could feel it but couldn’t put my finger on it. Then it happened, a dove came fluttering down with his mate, then another and another. They always come in pairs but recently the six-pack was only five. I don’t know what happened to the sixth dove. These were just your every day Morning Doves. Then the fifth dove appeared and I said good morning to them all. I know my husband thinks I’m crazy but hey, it’s all I have these days! Wait, what is that, a sixth dove, a WHITE dove! WHITE! Tears were brimming my eyes and I couldn’t say nothing for fear of scaring him away but I whispered, “A white dove! Honey, a white dove!” I was full fledge crying now, in all my years here I’ve NEVER seen a white dove! 

My husband jumped out of his chair and slowly went to the kitchen window after peeking out my window and seeing what I saw, a white dove! Through tears I asked him, “Please tell me you see him. Please tell me I’m not crazy.” 

“He’s there! I see him too!” 

A sigh of relief. I’m not letting God or my family down if I go this toxic route. Let me tell you in all honesty, I wanted God to tell me no, don’t do it! That would’ve been MY answer, but I have to listen. I could spin it and say God doesn’t want me to go this chemo route and twist His answer to meet my needs but that would be dishonest, that would make me as small and little as my doctor.

I was told to give it a try, if it has bad side effects that my body can’t handle, then stop, no matter what doctor liar says. This is my body, my temple for the Lord and I will only do what He leads me to do. If at the last minute my markers miraculously go down instead of up, I pull out of this chemo crud. I just feel there are too many obstacles that can’t be beaten with diet and supplementation alone.

Back to Square One… the will to survive.

P.S. In the following days, no Red,
only one dove, and the normal
sparrows and squirrels attend
the feeder. Just so you know.

This little fella visited me last year

Saturday, February 11, 2017

And The Beat Goes On...

Pss. 43:5 “Why art thou cast down, O my soul? and why art thou disquieted within me? hope in God: for I shall yet praise him, who is the health of my countenance, and my God.”

And The Beat Goes On…

Every day I wake up and am grateful for a new day and a new way to fight the cancer. My day begins with prayer, a reading of my Bible Gateway emails, and reflection on what God means to my life. It’s ironic how each new day brings emails, web page landings right in my hand that pertain exactly to me and what I’m going through.

I have my good days and those days are the ones I want to keep fresh in my mind while my bad days are good days where I feel negative people or events tried to wander into the spatial plane of my existence.

In two weeks the positive outweighs the negative by far. One lady friend basically attacked me telling me how wrong I was in making the decision not to do chemo because she’s lost people and cancer is ugly! I wish people would respect me enough to READ my words before berating me with THEIR experience and THEIR opinion as if I didn’t have enough of my own experience to make this judgment call on my own. 

I’ve lost people to cancer too, my husband has lost people to cancer also and I know it is an ugly disease that millions are fighting, struggling, winning and also losing. I KNOW I get it! I am not an uneducated child throwing my hands in the air and stomping in temper tantrum fashion, I get it, CANCER KILLS! In a span of decades, I would say I’ve lost well over 10 people in my family alone to the disease and there could be more that I haven’t heard of.

My day consist of wanting to stay alive! I don’t wake and turn to the nasty habit of eating what I want, drinking what I want, no, I think of my body as a broken machine and it’s in the shop for repair. When your car needs repairs and the mechanic says, “Well ma’am, you need a whole new engine. That’s gonna cost you about five grand.” You think the repairs are not worth it and you just go and buy a new car. Well, I can’t just go and trade my old body in and get a new one. No, I need to repair what I was given.

To ME, chemo is like putting a gas treatment in the gas tank and expecting it to run because you treated it with the best juice on the market. You didn’t weigh your options. The mechanic said you needed this gas treatment and that your car would run good for a little while, so you took his word for it even though he just told you that you needed an entire engine!

Sometimes people don’t trust themselves because we’re supposed to trust the mechanic or doctor who has been trained in their field of expertise. How many of you have taken your car in and when told that you needed an entire engine, decided on a second opinion and were told that it was fixable for a much cheaper price. You took their word because they HAVE to be right, right? 

I’m all about trust. Since my abusive childhood (read my entire blog) I’ve had many years of being leery and mistrusting people and having to go with my God given instinct. Something feels wrong about this big C diagnosis, I do not trust the rush, rush, hasty decisions that are making me feel uneasy.

One day the diagnosis, the very next week the oncologist, and that visit was all about starting chemo two days later. Wow, what a week. My mind didn’t even have time to let the diagnosis set in and they were already making plans for a port to be installed and begin chemo treatments, how I’d lose my hair and be sick but we’ll give you pills for the sickness. When I said, “WHOA, hold on there, Silver.” The oncologist told the initial BC doctor from the first-week diagnosis that I was not committing. What does that even mean?

When the navigator lady called on Monday (the 6th) she asked me where I was leaning and what were my thoughts. I told her I was considering the PET scan but I was working on getting my body, mind, and spirit in sync with all of this information. I need my body READY if it is ABSOLUTELY necessary to get chemo or any other radiation (PET SCAN). I’m still not getting clear answers on that one. One day my cancer is ‘not aggressive’ the next ‘mildly aggressive’, could you be more specific? I told her she could call me call Friday. 

Friday came, yesterday I woke feeling great as usual, happy to be alive one more day and praising the One who made it all possible. I took a shower, woke Adam and asked if he’d drive me to the store to pick up money (thank you, God) and to get some more veggies for my new way of living. I came home happy as a penguin sliding on the ice. I was gearing up for my walk when the phone rang, must be navigator lady, I thought. 

List of characters: Onc. – oncologist, navigator- works for Onc. and is supposed to help and guide me, BC- Breast Cancer specialist doctor who gave me the news of BC. Joni- That’d be me, the one in the background. 

“Hello?”
“Hi, this is the ‘BC Doctor’s office, the doctor would like to schedule you for an appointment.”
“For what?” I was totally broadsided on this one, I was expecting navigator lady from the oncologist office. 
“The oncologist informed BC doctor that you were not willing to commit.”
“To what?” I asked. 
“To your chemotherapy treatments.” Silence over the phone as she read the note Onc. had sent to BC doctor. “I’m sorry, I was just reading the note that Onc. sent to BC.”
“I thought navigator lady was going to call me today. I told her I needed time, and we were working toward a solution. I need a moment,” silence as I had to wrap my brain around what was going on, “I have to call you back.”

I hung up the phone feeling anger, anxiety, and perplexity along with a tinge of betrayal. I thought navigator lady was working with me, but obviously, after our call on Monday, she went and told Onc. that, “Nope, Joni isn’t falling for our scam we’re trying to pull on her.”

I was actually ready to tell navigator lady to set me up for the PET scan, but apparently, we’re all playing a different game here. I could not call navigator lady right then because my blood was boiling, my temperature rising and my heart went into overtime. “Well, there goes my walk.” I couldn’t even wrap my mind around taking my little walk.

This is what I’m up against. I’m being as open and honest in conveying my feelings but they are NOT hearing me and only have tunnel vision for what THEY want done. Why can’t we work together for a positive outcome here, why is it your way or no way at all? How come when I ask about vitamin C treatments they quickly, hastily brush off what I said and say, “We don’t do that here!” I’ll tell you why they’re realizing I’m doing my homework on this disease. I’m educating myself in treatments that are out there. I’m asking them to embrace something that is foreign to them and that is moving forward in the steps that it will take to eradicate cancer.

“We don’t do that here.” That means to me, we just do chemo and if you don’t agree with us on chemo, we have to send you back to the BC doctor and let her time and money be wasted on you. Our time IS money, see ya! 

That is exactly the way I’m feeling I’m being treated. I will call the BC doctor on Monday and set up an appointment and hear what she has to say, as for navigator lady, if she calls Monday I’ll think of something creative to say, you all know me.  *wink*

Pss. 107:20 “He sent his word, and healed them, and delivered them from their destructions.”

Tuesday, November 29, 2016

The Spirit of Christmas Gone Wrong (a poem)

1 Cor. 16:14 "Let all your things be done with charity."

Spirit of Christmas

Where has all the loving gone
in the hectic busy throng
of people scurried and buried
in the hustle and bustle gone wrong.

The spirit of Christ left behind
nowhere to find the peace
within my mind as all the souls
entwined by greed are blind.

Empty souls filled with hate  
it's clearly too late as your fate 
is sealed in a tomb with no room
for the saving grace to bloom

The spirit of Christmas shed
dead for the One who bled in 
His word we were led away 
from the dread that bears the dead

From where I stand my life is grand
the world is bland in no man's land
flames all fanned by the hate of man
it is with the love of Christ I stand.

The Spirit of Christmas will thrive
strive as I might to stay alive when
the peace surrounds me that I’ve 
been forced from man to survive.

Tuesday, August 30, 2016

Peeve Of The Day ~ "Just Get Over It."


1 Pet. 4:12-13 “Beloved, think it not strange concerning the fiery trial which is to try you, as though some strange thing happened unto you: But rejoice, inasmuch as ye are partakers of Christ's sufferings; that, when his glory shall be revealed, ye may be glad also with exceeding joy.”

My peeve of the day? People minimizing pain.

“Just get over it.” 

“Suck it up, buttercup, life goes on.”

Yup, those words right there grate on my nerves like screeching nails on a chalkboard. Telling someone to just get over their pain, depression, or anxiety, whatever burden they bear or cross they carry is minimizing what they are going through on a daily basis. 

If you’ve been through the depths of hell and have come back to tell the world about your experience that’s just great, you’re the one human God has chosen to break the gates of hell but if you’ve suffered in similar pain as someone else, don’t minimize what they endure daily by telling them to just get over it because YOU survived a similar pain.

You don’t know the pain someone is going through unless you’ve walked in his or her shoes and I’m pretty sure no one has walked [metaphorically] in another person’s shoes. No, we are on our own path in life and while you may have comparable pain, similar circumstance, identical health issues, you need to know that the person enduring the affliction owns what is happening to them, it can’t be borrowed or stolen it has to be LIVED.

Offering sympathy is one thing but comparing your incident with their daily struggle takes away the healing that they have in place and the prayer that they utilize by making their illness seem like they will just ‘get over it’ when that is not the case at all. They need time to drink in the healing that they are going through so they can make plans for what they need to change (if anything) and possible routes they might take.

Can you imagine if we were all on the same exact journey? Life would be no fun that way and would we all arrive at the same destination? Of course not. Just because the journey was ‘similar’ does not mean they are the same. Life is like that sometimes, we all think we’re headed to heaven but we do nothing in our life to get us there.

Reading and believing the bible isn’t going to get you there. Attending church isn’t any assurance that heaven will be your end destination. People tend to be misinformed when they think that the outward appearance of being a Christian is going to get them into heaven. 

All Christians may ‘appear’ to be the same but that is the farthest thing from the truth. We all are different in our journeying path but the one thread that unites us in a genetic strand of life is the blood of Jesus Christ running through our veins. 

Our disability isn’t what bonds us together. Our illness doesn’t define who we are in the living world. Our outward appearance isn’t the link to an eternal heaven. The only thing from the physical realm that is universally ours that we carry into the spiritual realm is LOVE. Love binds us all. Without love, the path will lead straight to hell and there will be no coming back to tell us about it on twitter, or facebook or through images on Instagram. 

So before telling someone to just ‘get over it’, or to pray more, hope for more, be more to the world; dig into the depths of your soul and find the love that lives there. When you want to hate…find love. If you feel the need to compare…do it with love. When you find a burning fire in your soul…douse the flames with love. 

Love is one of the hardest paths to journey on. You might think it is a simple task but tapping into the well of love on a daily basis is a struggle we all must face. You can give someone directions but that doesn’t mean they’ll follow them. Just as life and the trying storms we muddle through; we own our journey, it is ours alone. We might all strive to get to the same destination but we’ll all take different routes to get there.

May the God of love bless you all!

1 John 4:16 “And we have known and believed the love that God hath to us. God is love; and he that dwelleth in love dwelleth in God, and God in him.”

Amen!