Not Good

Pss. 63:3 “Because thy lovingkindness is better than life, my lips shall praise thee.”

When people ask me how I’m doing, like everyone else I say fine. They’re happy with that and offer me to ‘keep it up’! I’m not lying I just don’t want to get into the gist of what I feel is a failure. My husband, son, and mother-in-law don’t see it as a failure but I do. I feel like I’ve let myself an everyone else down. I come down pretty hard on myself.

I’m lying to myself more than anything. I want to be fine and believe I’m going to be fine but getting from point ‘A’ to point ‘B’ is a whole different matter. I accepted the easier of the chemo routes meaning not the kind where they slice, dice, and radiate you, then place what they call a ‘port’ under my skin to fester. The port is the loading dock for the poison they’d administer. No, I took lethal injection instead.

It has been nothing but lethal since the first ninety-minute injection where the side effects were tearing me up from the inside. They lied and told me it would get better; the chills and hard pain should subside with each dose and after the third dose I see no change in side effects except them getting worse. Had Allison been more concerned with the patient than the kickbacks from the Femara she kept trying to push, maybe she would have known about the swelling.

The last visit I had was two weeks ago and Allison, whom I think is the doctor’s assistant came in and saw me instead of the Dr. himself. I guess he was too busy and bears the weight of the patient load. For some reason when they ask you how you’re doing, and you tell them, they spin your words. 

“I’m not good. I’m in a lot of pain from side effects,” I say.

“Oh, they get better with time. Some women don’t even know they’re getting chemo. So, why don’t you want Femara?” There it is, the sale of drugs.

“Well, I know I don’t like the side effects, but I’ll push on. Not with Femara though, something milder the doctor offered.” 

The argument. “Chemo has saved millions of lives, you know?”

“I’m not getting into this conversation, it upsets me.” She knows this, I’ve seen her before. She pressed on until I was in tears and she was (unapologetically) apologizing. She knew what she was doing. They push the fear and scare tactic buttons until you’re a hot mess. Needless to say, she didn’t check my heart, my swelling, or my pulse, all that are normal things to check for in a visit. She was too busy trying to sell her drug.

I was going to give this weeks Herceptin a try, so off I went for my thirty-minute poison pump, where they pump the ‘juice’ into my veins. Afterward, at home, I ate and thought all was right with the world, I was feeling good, then the pain came like a freight train barreling down the tracks. I’ll never eat again, is what I said over and over in tears, wrapped in a blanket, and now in bed at five in the afternoon. This was the norm when coming home from the chemo trips.

A couple more days followed suit and it hit me, that since my first treatment what was once a vital woman was now a shell, a crippled woman trying to make it through each day. I was waking sad, sore and depressed. I couldn’t do my exercises that for seven months I’d been doing. I was just wheeling through the house, using my walker too, but the cane… it became a hindrance and I haven’t used it in nine weeks, almost twelve weeks.

Now when people ask how I’m doing I say, “Not good.” I just can’t lie. When I said I was doing okay, I was! I was walking, exercising, cold or not I got out of the house, intermingled with human beings, I was good. WAS being the operative word. Say your not and poof, everyone disappears. They’ll be back when the word is ‘good’ again. Not good is negative (I know) and brings them down. I don’t blame them.

My mother-in-law emailed me last week and asked if she could come out for a visit, bring me some flowers (for the outside) and I said YES!! Need anything? FRESH RIPE tomatoes! Lol So I was getting a visitor besides my son! Wouldn’t you know, we had so much rain the roads are a muddy mess. It was warm that day and she wore shorts and I told her, this week you’ll be bringing the coats back out! We are all in amazement of this crazy weather. Surprising tornadoes in the city of Lincoln, rain, high winds, cold, chill, floods again, if not, washed out roads! Just a mess, just not a frozen solid ground mess.

Then last week the pain hit me hard. I was having adverse reactions and needed to call the doctors office and let them know. I wrote about the ‘normal side effects a few weeks ago, like sleep problems, nausea, muscle pain, abdominal pain, loss of appetite, tiredness and more, so many more. But there were also the bad side effects. I remembered the swelling but needed to look and see what else I had.

Serious Reactions:
bone pain,
increased coughing,
swelling of the hands/ankles/feet, MY ONE FOOT IS SWELLED LIKE A BALLOON
sudden unexplained weight gain,
unusual tiredness, I FEEL SLEEPING TWELVE AND FIFTEEN HOURS IS NOT NORMAL
severe headache,
tingling or numbness, MY LEFT-HAND GOES NUMB/ NECK TINGLY
mental/mood changes,  I THOUGHT IT WAS NORMAL MENOPAUSE CRUD
fast or pounding heartbeat, and  YES
easy bruising or bleeding.           YES (WHERE’D THAT COME FROM)

I  called and told the nurse Navigator I was experiencing adverse reactions. She said to rest and put my foot up and see if that helps. It did for a couple of nights but that was it. Only my left foot is swelled. And… and… “I’ll take care of the scrip for ya. Ok, bye.” This malpractice is in their court, not mine!

I’m giving up on Herceptin and to me feels like I failed. But wait I didn’t, the DRUGS did!

I know I didn’t, and everyone will tell me so. I go this week for what the docs office thinks is a Herceptin trip and to their surprise, they’re getting me and all my adverse reactions, FINALLY, but no more Herceptin, on to a new plan, Doc! I hope I make it that far, until Wednesday!

There’s more going on that I need to tell you, I’ll call extenuating circumstances! 

TO BE CONTINUED….

Pss. 119: 78 “Let the proud be ashamed; for they dealt perversely with me without a cause: but I will meditate in thy precepts.”

Pss. 119:17 “Deal bountifully with thy servant, that I may live, and keep thy word.”

God Bless!

Spiritually Speaking

1 Cor. 1:26 "For ye see your calling, brethren, how that not many wise men after the flesh, not many mighty, not many noble, are called:"

Spiritually Speaking

The day I came home from my first round of chemo, my body felt like it was pulled out of an ice chest, set in the car, and told to go home and fend for yourself. Basically, that is what happened when the lady behind the desk looked at me stupidly and asked, “Is that all for today?” I’m not a cursing woman but I’m sure my eyes poked hers out with the daggers I was slinging at her.

Luckily, I had taken a small blanket that Steven quickly wrapped around me as he saw the chills were getting the best of me as he buckled me in the truck. Yeah, you’re at the whim of everyone when this takes place and luckily I got one of those good men that can handle taking care of me. 

But the white dove… when he made an appearance earlier in the week, I knew he was spiritually telling me that things were going to be alright. I haven’t seen him since mind you. Things just didn’t feel like they were all going to be okay at this moment as every bone jingled, every tooth chattered, and tears, well, of course, they were not in short supply, they overflowed my eyes like the Niagara Falls!

I got home, was helped into the house, helped into my pajamas (with a hefty blanket wrapped around me, mind you) and laid back on the bed. I fell asleep instantly. I woke to pee a couple of hours later, took a pain pill then it was back to sleep until the next day. 

The next day I woke to feel very stiff, hungry as all get out because a pretzel was the gist of my food the day prior, and I felt like I was in the Cone of Silence, I spoke in whispers, and no one heard. I was in a fog. Luckily Steven had off that day because I would’ve been no good to take care of myself. Honestly, a couple days passed before I can say I consciously remember what happened.  

I wasn’t hit with a ton of side effects and chills were the main thing on the day of treatment, to look out for. I was told they’d call and see if everything was alright on Friday but it was Tuesday before they called and asked if I had found the bottle of poison I passed on months ago. It was an Estrogen blocker but the side effects were worse than the chemo Herceptin and I quite clearly told her I was not comfortable with taking them. I found an alternative blocker and told her that THIS is what I’m taking, the only side effect was a possible headache. I’m okay with that.  The doc didn’t understand why I wasn’t willing to take a prescription DRUG with an arm's length of side effects including liver damage, possible heart damage, hair loss, and a lot of other losses I just am not willing to gamble with! He needs to see the bottle of what I’m taking and I’ll show it to him, next week on my second trip of a ten-year dance with chemo. (The Doc is a he, Navigator is a she)

I knew my birthday was coming up and I was so glad to finally relax and have a ray of light shine in my window after the floods and snow absorbed my mind and chemo stole my positive line of thinking. I was losing hope and this is not something I’m familiar with! It is totally foreign to me! I’m upbeat and overflowing with positivity! 

Thursday would be a Joni day! My son was coming out to see me to give me my gift, (because he’d be working on my birthday) and my mother in law wanted to come out and see me too, because on Saturday my nephew, her grandson, was getting married. I haven’t seen her since Christmas, so that would be nice. I wanted to hear how the flood affected her little town that made National News for the first time in their lives I imagine. She had not seen any of my progress since December and I’ve come along way since then. She had no idea about my choice of doing chemo. She had company the week before and I was too shaken by the events to rain on her parade so I kept it personal. Okay, my online friends knew more than my family, just so you know!

My son got me an awesome sketch pad and an extremely nice pencil set so I can get back into my sketching. I need to refocus on something more than Facebook and just writing about the Big C. I need to focus on my passions and love! My drawing, my poetry, my gift. My story, my husband and my son are number one in my life so I need to focus on caring for them, but also nurture the passions and gifts that God gave me. My M-I-L brought me a card with money (always needed and helpful) and a soft cuddly bear with inspirational words attached to her ribbon. I named her Harmony, a grayish bear with one black ear! A precious addition to my growing stuffed family.

I was slowly feeling uplifted, but I needed to be careful because one thought, one memory could just knock me down. Saturday, my birthday arrived, I was going out to enjoy my day and have Chinese food! Woohoo! I’m on a strict protocol but sometimes the strictness binds me and it gets me down. It would take a knock on my door and a beautiful flower from someone many miles away to boldly lift my spirits! Online friends who can reach your front door with acts of kindness need their own special blessing because I’m telling you, it started a snowball of an all-around good day!!! Thank you! 

At the Chinese restaurant, I got the garden medley. My goodness, green pepper, broccoli, mushrooms, onions, carrots, and more in a nice sauce, with rice on the side! It had been gray and dreary and my one wish, my one prayer was for some sun not only for my birthday but for my nephew who was getting married outside at his family's home where he grew up. He wanted a special day as much as I did. As I walked out the door to go on my adventure, the sun came out!!!  Bright and beautiful with a little blue sky in the mixture. It was going to be a great day! What a meal I had! I bet it was a really nice wedding, too. Because of my disability, I like to spare people the burden of coddling me when something more important than me is taking place. 

I was feeling hopeful but I’m telling you it only takes one thing and wham, I’m down. Sunday it would be my talk to my mother. She is so depressing. She says over and over how lonely she is, how she has nothing to live for, life is not worth living, etc. etc. NO, no one can get through to a woman who all her life was dedicated to her husband and nothing else. Of course she has nothing to live for, with him gone, she literally has nothing. It’s sad and it brings me down, and she has NO IDEA of what I’m going through.

Monday came and I was trying to pick myself back up! I woke, cleaned myself up, got dressed, exercised, ate fruit, washed clothes and I was well on my way to a brighter day, even if the sun wanted to play hide and seek every single day! Adam visited and it was a good day, exhausting but good. I needed rest. I normally set myself by the front window with my computer but I was so exhausted by six o’clock I decided to just go lay in bed and meditate. I took my computer and instead of surfing, writing, or anything else, I chose meditative sounds to help me calm my nerves and the loss I had been feeling.

I had not realized thirty minutes had passed but I opened my eyes after a relaxing prayerful meditation and just sighed. It was a good sigh and then I caught something out of the corner of my eye. Something was saying to look out the window. The curtains were drawn but a couple of slats of the mini-blind were open. I saw something white. A mound of snow? No, it moved. Must be my white dog, Riley. No, it’s too white to be her. I jumped up not believing what I thought it was, a duck, so I made my way to peek out the window.
“My dear sweet Jesus, it’s a duck!” A BIG WHITE duck and a small black one were nestled on my lawn. Just sitting there looking around as if dazed.

My husband jumped from his chair and came in to see. He couldn’t believe the white dove and now a duck? He was scratching his head too! We both made our way to the back of the house so we could see with camera in hand what we were seeing! There they were Yin/Yang I thought. A big white duck and a small black duck.

From Wikipedia: “In Chinese philosophy, yin and yang is a concept of dualism in ancient Chinese philosophy, describing how seemingly opposite or contrary forces may actually be complementary, interconnected, and interdependent in the natural world, and how they may give rise to each other as they interrelate to one another.”

Hope was speedily returning to me. Could this be the push I needed to get me through another session of chemo next week? When Tuesday came I was almost afraid the hope would be gone but it was still there. And when hubby checked the mail there was a THANK YOU from the wonderful ladies of Physical Therapy with a thank you card. I had framed a poem and gave it to them for their office and they thanked me for that ‘blessing’ and so much more, my genuine thoughtfulness, my spunkiness, and the laughter I brought to them. I had made my mark as I apparently do. 

I read something this morning by Max Lucado: When Joseph, Mary’s husband, was asked to do something for God, instead of saying NO,  “Joseph obeyed. God used him to change the world.  He does the same with us.  Be a modern day Joseph.  God will use you to bring Jesus into the world.”

I think I found my calling. I’m listening, Lord! I’m listening. 

A Dove Tale

In Texas, my dove visits

Josh. 1:9 "Have not I commanded thee? Be strong and of a good courage; be not afraid, neither be thou dismayed: for the Lord thy God is with thee whithersoever thou goest."

A Dove Tale

I know my friends think I’m crazy, that’s a given. I’m always ranting and babbling about holistic and alternative treatment as if it is the Holy Bible of the medical world. I sure hope I never gave that impression. The first impression I like to leave you with is for you to go to God in prayer and see what He has to say about your situation. He DOES listen! He WILL answer!

Now the second thing I’d like to leave you with is timing and patience. We all go to prayer with wants and needs, OUR wants and needs. While God is all about our wants and needs too, with Him, it is all about in HIS time and not ours. Meaning sometimes we’re not going to like the answer we receive, or when we receive the answer.

When I was first diagnosed I went to Him first and listened to Him. Now you’re probably saying, “And He told you what you wanted to hear, right?” Well shockingly enough, yes and no. I had no intention of doing port chemo and when God gave me an option, alternative treatment, I listened but went for a second opinion from a doctor. It was obvious no doctor was going to hear me like God, or pay my thoughts and opinion one piece of mind. Nope, they were all about drugs and money, point blank! 

So, on I went for a year and a half listening, praying, loving, learning and healing. During this time I really tuned to the animal and plant kingdom. Whether it was my dog (who was still alive at the time), the stray dog who is still here four years after wandering onto my property, or the birds and squirrels. They are all a part of God’s kingdom and the kingdom I live in most of the time. Man has let me down on major levels throughout my life, so I have to have someone, some THING to turn to, I trust the animals. The squirrels, the Cardinals, the Doves, the Owls, the deer, the wandering wild turkey, and the Falcons; the signs, the wonders. There are more things I look for, if you can imagine, from God himself. I listen, good or bad, I have to listen, this is who I am, this is who God shaped me to be. He didn’t fashion me out of false clothing that I put on every day to prance around and show you, no I received the straight up Value Village clothing to walk around in and proudly display because this is who God created in ME!

I was recently hit with oncologist lies. I don’t know what to do with that. This is my third oncologist (I don’t have a variety out here in the middle of nowhere) so I go where God leads me. This doctor is doing an okay job, but he likes the fear tactics and scaring me and in my weakened state, I fall prey to what he offers. I’m alone and abandoned out here, I only have my husband, son, and my God. Yeah, that’s a lot to me! Besides my Spiritual Family, everyone else is just voyeurs along for the ride. 

1 Peter 5:8 “Be alert and of sober mind. Your enemy the devil prowls around like a roaring lion looking for someone to devour.”

The Big C is nothing to mess with. I know in the deepest depths of my soul that this can be beaten on an alternative level but funds are needed for that route, funds I will never hold in my hand for say Vit. C therapy, Cannabis, UV therapy, a chiropractor even and so many more treatments but out of my reach. So I have to go with what I’m offered, cannot afford, but is covered.

The doctor wrongly assumed that by scaring me back into his office a week after my visit that he’d devour me with fear and I’d jump into Chemotherapy, the port chemo that he’s been pushing all along.  He hurried me in to tell me my markers had gone up, and unknown to me, had been going up all along, he LIED! He lied when he told me they were going down, they went down once, in Oct., then went up in Dec. Jan. Feb.! And here I was two visits in February. Of course I’m going to be scared. I trusted him! 

He didn’t know that his Navigator nurse had already canceled my oral chemo from being delivered. She had called the day of my blood test and told me to stop taking the toxic drugs and that is what I did, the doc was not prepared for me to say NO to port chemo. He wasn’t prepared for me to ask what the rush was and why couldn’t it have waited until my next scheduled visit. He mumbled and babbled but I was not ready to completely give up, just meet him on MY terms, not his. I agreed to the intravenous chemo drug Herceptin. Toxic and debilitating and I knew I’d need prayer and guidance on this one. Lord, don’t fail me now. This to me is not a courageous route. They won.

I agreed only if, by my next scheduled visit, my markers were still rising. I told him I’d wait around for the results and not wait to get home to be scared. I’m also going to ask for a printout of the graph that visually shows me my red, white and C cell counts. He didn’t know the nurse had one printed for me obviously because again he lied and said my red and white cell counts were rising also. I hold the graph in my hand and it shows no such thing. My red and white cells were still dropping. So we’ll wait and see. Do I go on or do I TRY and find another doctor. I can’t keep toying with my health! I run out of choices.

Prayer upon prayer, tear upon endless tear, decisions to be made, give up, give in or trudge on. My doctor also assumed I meant that I’d sign on for this drug and it would be in my arm like the next day. I said, no, I want another blood test before my hookup and he said he needed to schedule a test to check and see if my heart can handle this toxic drug they’re going to pump into my veins. I told him I work on my husbands' work schedule, not anyone else’s. We NEED food to eat and he NEEDS to work, I have to finish up my Physical Therapy and I’d see the good old liar in three weeks.

In these weeks I’ve prayed. I had to weigh the pros and cons. I shared with my husband and son and listened to their opinion, I prayed, because I already knew what ‘I’ wanted but I’d listen for God…..

I woke on a cold brisk morning, my feeder aflutter with my usual winter birds. For a week or two, a female cardinal had been hanging out with the sparrows and I asked her, “Where is Red? You get him back here!” Red is the male cardinal who only makes special appearances since he was chased away by the Blue Jay family. I needed to see him, I needed my ‘other’ family and that is the ones of the animal kingdom. 

On this morning he was hard to miss, his rich red color against the white snow as he scurried around for some stray seed. It’s funny when they seem to stop and look right at you, and slant their little heads, then go on about their business, but sure enough, Red made his appearance this day, no sign of Bell his lady friend.

In the following days as I waited to discern answers to my prayers, I enjoyed the bunnies at the feeder in the morning before the sunrise. Four bunnies, all of which I thought had moved on because I hadn’t seen them all winter. Tracks in the snow told me they were around but I never saw them until this morning when I turned on the outside light to see if it had snowed. To my surprise, there was snow AND bunnies! As the sun came slowly cresting over the horizon on this rare event of a day, (we never see the sun these frigid, gloomy days of winter) my birds along with the squirrels all started making their appearance.

This day was different, I could feel it but couldn’t put my finger on it. Then it happened, a dove came fluttering down with his mate, then another and another. They always come in pairs but recently the six-pack was only five. I don’t know what happened to the sixth dove. These were just your every day Morning Doves. Then the fifth dove appeared and I said good morning to them all. I know my husband thinks I’m crazy but hey, it’s all I have these days! Wait, what is that, a sixth dove, a WHITE dove! WHITE! Tears were brimming my eyes and I couldn’t say nothing for fear of scaring him away but I whispered, “A white dove! Honey, a white dove!” I was full fledge crying now, in all my years here I’ve NEVER seen a white dove! 

My husband jumped out of his chair and slowly went to the kitchen window after peeking out my window and seeing what I saw, a white dove! Through tears I asked him, “Please tell me you see him. Please tell me I’m not crazy.” 

“He’s there! I see him too!” 

A sigh of relief. I’m not letting God or my family down if I go this toxic route. Let me tell you in all honesty, I wanted God to tell me no, don’t do it! That would’ve been MY answer, but I have to listen. I could spin it and say God doesn’t want me to go this chemo route and twist His answer to meet my needs but that would be dishonest, that would make me as small and little as my doctor.

I was told to give it a try, if it has bad side effects that my body can’t handle, then stop, no matter what doctor liar says. This is my body, my temple for the Lord and I will only do what He leads me to do. If at the last minute my markers miraculously go down instead of up, I pull out of this chemo crud. I just feel there are too many obstacles that can’t be beaten with diet and supplementation alone.

Back to Square One… the will to survive.

P.S. In the following days, no Red,

only one dove, and the normal

sparrows and squirrels attend

the feeder. Just so you know.

This little fella visited me last year

Good and Bad Days: We All Have Them

Matt. 13:48 (KJV) “Which, when it was full, they drew to shore, and sat down, and gathered the good into vessels, but cast the bad away.”

Good days and bad days: we all have them

I’m sure we all have our good days and bad days; we know they’re bad when things go wrong and we see them as good when everything falls into place like a row of dominoes. While yes, I admittedly suffer from PTSD, I myself see more good days than bad and to me, they are all positive steps toward my healing. 

Jer. 29:11 (NIV) “For I know the plans I have for you,” declares the LORD, “plans to prosper you and not to harm you, plans to give you hope and a future.”

As home slowly becomes more familiar to me, I feel the healing in the core of my being. The first few weeks though, of being home, felt like an unending carousel ride. That very first Monday I was Mrs. Popular in that everyone wanted a piece of me. I had calls from the home health nurse, the physical therapist, my oncologist office and the Cancer Center’s radiation office. Emails were sounding in from my mother in law wanting to come see me, sister in law auntie and uncle, everyone wanted a piece of this broken woman and how do I tell them all to just SHUT UP in a polite manner? 

My first Monday morning was an assertion day, I was going to take hold of my surroundings, my activities, and my appointments. I was not going to be TOLD to come here, or do this or do that, I would tell THEM what I was willing to do! I was going to take back what I lost!

First up, the home health nurse, Mandy, the woman I had only met on that day I was exiting in an ambulance, yes, she could come. Physical therapist, yes she was allowed. The oncologist? I’ll see you sometime next week. The radiation nurse, I asked if it could be put off for a week as I regained my bearings now that I was home. They were fine with that, setting me up the following week for my two (week) five-day sessions. Ten treatments in all to the healing left femur.

The emails were more targeted to my husband than me because it hurt to type on my laptop. I didn’t have a bend and stretch out mobility, I had a stiff-as-a-board-lay-there-and-be- good, semblance. Computer stuff would have to wait for a spell. I’d send out a 'hey' to friends and let them know I was still alive and as I knew they would be, they were more than understanding and just happy to know I was home. 

Monday was going along smoothly except for me missing my husband who had to go to work with worry on his mind trying to remember if I was set up well enough to be alone. Since we fibbed a little to get me home, I assured him I would be fine, and I was. As scary as the surroundings were, I was HOME and that was good enough for me! 

Now keep in mind, I had not bathed in twenty days. A wipe-down at the hospital but not a thing at the nursing home! Not a wipe, not a rag, nothing! I even used my own kleenex when I had to do my business. So when my mother-in-law wanted to bring his uncle to the house because he’d be ‘in town’, I had to say no way! I was not up to ‘visitors’, I needed to HEAL. I needed time! It all felt so rushed and the kaleidoscope began with its pretty colors and I was getting dizzy.

She said she understood but could her friend from church bring out food? I think she mentioned cookies or something. I told hubby to gently say, NEXT WEEK! Dang. I loved that everyone was so concerned, but I felt like the people who just lost a family member and friends would clamor to come over and bring food at the most inopportune time. Not to be rude but please send love, condolences and give them some space and time. Not a month, just breathing room. Please, don't turn this into how you lost someone and loved those people doing that for you. I appreciated EVERY bit of stirring also. I was suffocating and I needed to BREATHE! 

All appointments set, I slept. I slept and slept some more. Now it was time to move onto healing. The home health nurse brought me a hair-washing cap. You place it on your head, rub your fingers intensely and voila, your hair is water-free washed. It worked marvelously! She supplied an ample amount of body-wipes, and hubby he produced a bucket of water and a rag where I felt refreshing water on my face for the first time in twenty some days! Moving right along. 

I did have the nurse in tears, not bawling because they need to maintain distance and composure in their job, but her eyes were brimming at the sad painful story I’d tell. I had to get it off my chest so each person, professional or family, my story spilled into their ears and leaked from their eyes. They were shocked, then amazed at the strength I carried. I made it perfectly clear it surely was not me, it was God that they saw IN me! 

My healing was nothing short of astonishing to all who were witness to me. The radiation nurses saw me go from gurney to wheelchair within a week. From assisting me onto the slab to minimal help to no help needed at all. This was happening in a ten day period of time! 

My oncologist even showed signs of wonderment at my speedy recovery time. Not only my Oral Chemo and blood cell count healing time but my physical mobility healing time. All were displaying awe and wonder and were quite vocal in letting me know that this was nothing short of amazing. Doctor’s will not touch the ‘miracle’ label, but here I was, in their face, a living breathing healing miracle!

So as I have good days and bad days, it is all a part of the intricate veins of healing. People sometimes think healing happens in the blink of an eye but they need to know and understand how to appreciate the time and effort that goes into producing a work of wonder. Noah’s Ark wasn’t built in a day, the great Pyramids didn’t appear out of thin air and Jesus Himself took nine months to make a physical show. One step at a time is truly meant to be one breath at a time, and it is never our time, it is always His time. 

All praise and Glory to God! AMEN! 

Ecc. 3:11 (NIV) “He has made everything beautiful in its time. He has also set eternity in the human heart; yet no one can fathom what God has done from beginning to end.”

My Journey: I'm Home

Prov. 7:19 "For the goodman is not at home, he is gone a long journey:"

“My faith is made stronger through trials, my strength more powerful through prayer.” ~ Joni

My journey continues: I'm home...

Friday, October 5th, we pulled up to the house. Being wheeled into the house, everything looked different, everything felt different, and to me, everything WAS different. My eyes kept darting to the left then to the right, I looked at things I had not seen for twenty-one days. The rooms either grew bigger because I wasn’t squished in a corner or shrunk smaller, ornaments were misplaced or moved, furniture rearranged or still the same, my dog Sassy was missing, as well as my son and I anxiously wasn’t sure what to make of my homecoming.

I’m home. I repeated those words in an eerie fashion, not much unlike Dorothy clicking her heels and repeating, ‘there’s no place like home’, mine was shortened but meant the same thing, I was HOME! In the safety of my husband's care. In the comfort of all I knew. In surroundings that were familiar. Home, the place where my heart was most secure.

Home to me took on new meaning. It meant no more trappings, no more nurses, no more poking and prodding, home meant to rest, for me anyway. To my husband, home for me meant he was strained with unfathomable responsibilities, new routines, new duties, more pressure, new to him caregiving. We both had major adjustments to get used to. Our wedding vow of ‘in sickness’ was now slapping us upside the head forcing us to embrace this segment.

He asked if I was ready to go into the bedroom but right at that moment, I just wanted to be placed in front of the window and stare out, repeating ever so lightly, I’m home, over and over again. No squirrels or birds to greet me, just an open cornfield that by the time I returned home was already harvested. I missed harvesting season, my highlight of country living. I call the squirrels and birds my animals and as I looked out the window, I could see my animals had not been tended to while I was away. This would soon change, just add another thing to the honey-do list mounting. This list would grow over the weeks as I was being cared for and lessen in the months, as I would heal with time and I could fend for myself. That day was still too far away to grasp.

My husband had asked if I wanted my computer but my mind was blank, still struggling with the fact that I was in new surroundings. While I missed my friends immensely and knew that they awaited word from ME, not my son saying I’m okay. They would have to wait three more days for me to make an appearance on Facebook to announce, “You can count me down but never count me out!” 

Everything in its time. It took time to adjust to home living again. It took time to acquaint myself with what it felt like being alone. It took time to understand that I was dependent on other people for my well being. Yes, God handled the majority of my spiritual care and for that, I’m grateful beyond measure but getting used to being home was a task for my family and me in and of itself. 

By the time nightfall came, fear was creeping in like a fog looming over me and holding me entombed in its presence. I held tightly to the blankets as I pulled them closer to my chin, tears were rolling down my cheek, and I began praying for a peaceful night sleep and for God to watch over me because this was a mind-numbing scary first night home. 

Steven would sit quietly at his computer tapping ever so lightly on the keys knowing I was safely in his care. I would listen to the new sounds surrounding me and map out the next days' task. As my eyes scanned the shadows on the wall, my mantra seeped from my lips, again and again, I’m home, I’m home. Now the journey of healing would begin to take hold.

Mark 5:19 "Howbeit Jesus suffered him not, but saith unto him, Go home to thy friends, and tell them how great things the Lord hath done for thee, and hath had compassion on thee."

Which Voice Do You Hear?

The face in the clouds

Acts 14:10 "Said with a loud voice, Stand upright on thy feet. And he leaped and walked."

Which do you hear?

Two voices, one of positive encouragement the other a put down, both on the same exact subject. An example? 
"Does my hair look okay?"
"It looks great."

"I think it looks like it got caught in a blender on high speed!"

When you hear (read) both, which do you hear that you'll carry with you? Do you hear how great your hair looks and you carry that positive affirmation through your day? More times than not you hear the negative comment and go on with your day with a little chip hanging on your shoulder ready to pounce on anyone that looks at you the wrong way.

“My sheep listen to my voice; I know them, and they follow me.” John 10:27 (NIV)

I love this from Bible Gateway: "Jesus doesn’t tell us if we dig deep enough or study long enough or go to church often enough we’ll be able to uncover the hidden mystery to hearing His voice. Instead, Jesus lists only one prerequisite to hearing His voice: Be one of His sheep." - Katy McCown

You see, my point is, I listen to God but there are people out there muffling His words for me. I sit in the quiet of the morning, meditating on His word and His voice, listening in the still small place that He and I share in the spiritual flow of the cosmos, my soul. When I come out of this place, some negatively call it 'from under my rock', I see it as time WITH my ROCK of salvation! The negative voice hurts and puts a dent in my space but I truly try so hard not to carry it around in my day. It's kind of hard when the clamoring comes beating on your door seeking what it is you have hiding there.

It's ironic that I listen and hear his voice. I try and tell people that they too can listen and hear but I assume they have discord hammering at their door with other priorities that keep their focus away from hearing Christ in them. Yesterday, I received an email noting the distractions WE ALL have knocking on our door keeping us away from hearing HIS voice and listening to another voice that pulls and tugs at us and we often aren't even aware.

I happily live under my rock for many reasons, one of those reasons is to keep the distractions from trying to pull me into the deep end of the pool and drowning me. The other reason is that it is a cool solid place to dwell when needing a rock to lean on that actually listens and HEARS what I'm whispering. I can scream and shout outside of the rock and no one hears, and I'm okay with that too. After all, Jesus has been gently nudging people for centuries and the people smothered Him with fires and flames so they didn't HAVE to hear him.

When I was first diagnosed, the doctors circled around me like a school of sharks. They in no way offered me anything remotely helpful. This conservative state wants you to swim WITH the sharks or be eaten alive BY the sharks, you are not allowed an in-between spot on the spectrum. I am neither liberal or conservative, so basically, in a nation that DEMANDS you to choose a side or be burned at the stake, I'm screwed! I go to the doctor, they offer me drugs. I tell them my stance, they scoff and wave their hands as if blowing me off. They don't, I repeat, they DO NOT offer anything alternative! I need to cross state lines for that, and since I don't see that in my cards anywhere down the line, I stand firm with Christ and where He and He alone will lead me. HE is my safety net, my Rock! 

I CANNOT afford a chiropractor or an acupuncturist, I cannot do yoga because of my arthritis. I cannot turn to a doctor because all they spew at me is, "You need chemo chemo chemo. You don't need a chiropractor, you need chemo!" or "Here, have some drugs for your pain." That right there is the sharks I won't swim with. You too can agree or disagree with me, it is your right. I thank you all for caring endlessly for me and wanting to help. I sincerely love you all to the moon and back! 

I think I need to go under my rock for a bit and enjoy what is left of summer. Which voice is it that you hear? I hear God telling me over and over, "I GOT THIS! I GOT THIS!" All my praise and Glory goes to HIM! 

This is basically how I feel when not under my rock.

"And then! Oh, the noise! Oh, the Noise! Noise! Noise! Noise!
That's one thing he hated! The NOISE! NOISE! NOISE! NOISE! " The Grinch, Dr. Seuss

Godspeed friends, in all that you do, be BLESSED!

2 Cor. 1:3 "Blessed be God, even the Father of our Lord Jesus Christ, the Father of mercies, and the God of all comfort;"

A closer look at The Face in the Clouds

It is Finished

John 17:4 “I have glorified thee on the earth: I have finished the work which thou gavest me to do.”

It Is Finished

Do you remember where you heard those words? If you’re a Christian you remember those as words from Jesus on the cross. It is my understanding that the Greek term means ‘paid in full’. Jesus paid the debt for our sins in full.

I’m using the words a little differently as I’m finished with the work He had ME to do. He had me do a much different leg of work and I’m finished. I need to go now and prepare my book and works and I need to be released from distractions that the world tries to ingrain in my being. While I see the world as weakening me, I am strong and must do what I must do. I will continue to write to complete my healing. I'm unsure as to my next leg of this glorious journey.

You might be wondering what kind of work He had me do but my most dedicated followers, who’ve been with me from day one KNOW, they don’t need an explanation. I certainly had my work cut out for me as a good and faithful servant. I am in the midst of healing and this is what I offered to you but all too often my words were met with the doubt of Thomas and the denial of Peter. I think that has been the hardest part for me on this journey.

I knew from day one that my path would be met with doubt because even I myself had doubts in the beginning but the more and more I progressed in knowledge and wisdom, the more and more research I did, my duty became clearly evident. I was healing and I needed to share this glorious truth with my faithful friends.

The funny thing is, it became a truth not shared by others. That is where I staggered a bit, the ones who fell by the wayside. I became too preachy on this journey, a testament that many were not ready to accept, and many probably thought I was misinterpreting my duty to my Lord. I assure you, I serve only One Master!

In the beginning, when I was diagnosed with this disease of a lifetime, I had friends that visited my Facebook wall daily and surrounded me with support and compassion. Sympathy leaked from the outpouring of emotions in encouraging words wanting to be a part of this woman’s world before she ‘gave up the ghost’. It wasn’t until I testified that God was leading me down a different path of healing and living that these ‘friends’ began drifting away like florets in the wind. I have to say, it hurt and was unexpected but then I was assured that it would only get worse before it got better. The truth was realized. I have always heard the term ‘with friends like that, you don’t need enemies’ ie: An expression indicating that one's close associates prove more adversarial than one's opponents.

I came on strong when warning you of the signs and symptoms of not only cancer but other autoimmune disorders as well as obesity running rampant in America. Link after link I handed you a truth that took me time and energy and a whole lot of prayer before bringing into your hands [eyes] but it was my calling. My duty was not to walk alone on this path but to bring you all together with me in agreement and then make the change for the better. Just like when Moses brought the people out of Egypt and led them to a new way of life, they strayed. God knew this and accepted the fact that they were only human. I too have to accept that in thousands of years, man has not and will not change, except for the few and not the many.

When Jesus was hung on the cross and whispered those words ‘It is finished’, I can feel the sorrow in His voice every time I read them and utter the words out loud. He was sad because He knew he would be denied and that man would not change. He didn’t hurt for Himself; He was hurting for the man that He was bleeding for.

I offered a truth not from a religious standpoint but from a spiritual one and maybe that is what people couldn’t handle. Maybe when I said that I was being led by God my followers wanted me to put a religious stamp on my words but again I’ll tell you, God is not a religion! Putting God in a box is not what His Words are about. If you define your faith by a religion and not the Spirit of God, maybe some deep soul searching is needed.

I remember in the beginning when I started this journey one lady blatantly attacked me telling me that this is a serious disease not to be messed with and that she had lost too many people and that trusting God should only go so far! Wow, I couldn’t believe for one that she would attack me like that in my condition, or two that she wanted me to trust man over God. God reminded me that they first denied Him and that this was going to be my journey also and to be prepared. I don’t think anyone can prepare for betrayal, denial, and attacks. That is why Jesus was so sad because we [man] had let Him down. BUT, it didn’t stop Him from completing the prophecy. 

1 Sam. 8:7 “And the LORD said to Samuel, Listen to the voice of the people in all that they say to you: for they have not rejected you, but they have rejected me, that I should not reign over them.
8] Like all the deeds which they have done since the day that I brought them up from Egypt even to this day-- in that they have forsaken Me and served other gods-- so they are doing to you also.”

Titus 1:16 “They profess that they know God; but in works they deny him, being abominable, and disobedient, and unto every good work reprobate.”

Another supposedly dear friend kept saying things like [to no one in particular] “Wouldn’t you just like to slap some people upside the head when they’re going in the wrong direction?” Stuff like that I KNEW was directed at me as they too once fought this disease but they clearly chose the ‘pharma/business’ route. I was not, and am not saying, and never have said, that the chemo route is a wrong choice for YOU! I say and will continue to say that it is the wrong choice for ME and with PROOF in my hand, I will continue my stance! Rest assured, Google searches only became necessary AFTER my firm assertion from God who gave me the direction and started me on this journey. 

To make comments about my course without even reading what I’ve written is like telling God that maybe He shouldn’t have used Jesus to send a message by HANGING, goodness mercy me! I am saddened to know that you wouldn’t take the time to read the entire story, just the portions that resonate with you and kind of irk you enough to steer clear of me. It’s okay, I’m not God nor am I Jesus, and there is no penalty for denying my truth. 

I do have to thank the ones that day after day stayed committed to following me and my words and found solace in them. I thank you from the bottom of my heart because this trek would have been much harder without the support of my dear loving friends. My family [except one or two] has all but forgotten about me and tossed me under the bus, just like the Oncologists who denied me because I kept them from making 150,000 dollars as a chemo patient. I pray for them, only THEY will pay for their rejection. I am stronger where I stand and my virtual friends lend me an arm of tenacity I didn’t know I had in me. Please continuously keep me in your prayers. Place me on a perpetual pray list because without your prayer, I am nothing. I am living proof that with man all things are impossible but with God nothing is impossible!

It is finished.

God bless you all!

Matt. 19: 26 “But Jesus beheld them, and said unto them, With men this is impossible; but with God all things are possible.”

Luke 1:37 “For no word from God will ever fail.” (NIV)

Joni and Adam 2003

The journey: leaving Baltimore

Happy Birthday to ME!

Pss. 118: 17  “I shall not die, but live, and declare the works of the LORD.”

Happy Birthday to Me...I am Special

I had a dream last night with my brother-in-law, M, and sister-in-law, B, in it; they crept into my dream to point out that I am special. In the dream, he said I couldn’t go to the store he goes to because I wouldn’t be allowed to register. M went on to say that I was above that store, meaning I was too good to shop in the store. At first, I was offended but my S-I-L was saying that he meant it in a good way. He said that I was special in my thinking and very rare and that the people wouldn’t allow the likes of ‘my kind’ in their store. Geez, I never even got to see what kind of store I was too good for, but since he is an avid member of agriculture and all things Monsanto, it might have been a feed store, in my mind anyway.

I have to admit, I am kind of special. I came into this world on my Mother’s twenty-ninth birthday, the last of six kids. Every year on our birthday my mother gives each of us kids our birthday story and of course, my day was special for different reasons than theirs. Besides the special day, the thing that stood out to me the most was her doctor had told her she had plenty of time before delivery and to relax. He left the room and within minutes I popped out! As the nurse called the doctor back into the room, I was already in her hands, covered in ooze for the doctor to clean up. 

Ironically, in my twenty-ninth year, I gave birth also. It wasn’t on my mother’s birthday instead it was three days before my dad’s birthday, both right after Christmas! And my doctor did the same exact thing, he said I wasn’t ready to deliver; I was hours away from delivering. I said to him, “Stay close because that is exactly what my mother’s doctor said when I was born and made a hasty arrival.” The doc left the room chuckling and bam! I was so ready to push! He wasn’t minutes out the door, he didn’t even have time to put his scrubs on, hurrying back to the scene and there my son was, arriving in a hurry, my after Christmas special surprise.

Then there is the fact that I’m the baby of the family. My mother always treated me special and my siblings made sure I knew that she treated me more special than them. 

Then there’s God. I woke this morning to gusty winds and clinging cloudy skies. I sighed. But it’s my birthday, I’m special remember I uttered softly to the morning. As I continued on in the quiet of the morning reading my scripture I could see light outside the window meaning morning was near. I opened the curtain a little because I love looking out at the sunrise. It sure didn’t look like I’d get one today with all of the clouds.

Then it happened, the clouds parted just enough for me to see a glimmer of sun streaking its rays out of the clouds. There it was, God said to me, “You ARE special!” I hurriedly snapped a picture. Then I sat down and the sun burst momentarily through the clouds so bright I had to close the curtains a little! I looked at the weather for the day: windy, clouds and chance of storms later. 

3 23 18 Sunrise

Yes, I am special! A thunderstorm this evening will be icing on my cake! No, I didn’t have cake, I don’t miss it either! I had a glutenfree pizza! That’s my Friday treat. It’s been five days without the use of my cane. I went shopping yesterday on a sunny 65-degree day and am almost (not 100%) myself again! I’m special!

I have wonderful friends who all took time out of their day to wish ME a Happy Birthday! I thank them from the bottom of my heart! My sister called, my husband was home as was my son, my mother-in-law gave me a beautiful card and an enormous fruit tray! And to finish off the day… A thunderstorm! It is well…with my soul! 

God Bless you ALL! 

When peace, like a river, attendeth my way,

When sorrows like sea billows roll;

Whatever my lot, Thou hast taught me to say,

It is well, it is well with my soul.

Refrain:

It is well with my soul,

It is well, it is well with my soul.

Though Satan should buffet, though trials should come,

Let this blest assurance control,

That Christ hath regarded my helpless estate,

And hath shed His own blood for my soul.

My sin—oh, the bliss of this glorious thought!—

My sin, not in part but the whole,

Is nailed to the cross, and I bear it no more,

Praise the Lord, praise the Lord, O my soul!

For me, be it Christ, be it Christ hence to live:

If Jordan above me shall roll,

No pang shall be mine, for in death as in life

Thou wilt whisper Thy peace to my soul.

But, Lord, ’tis for Thee, for Thy coming we wait,

The sky, not the grave, is our goal;

Oh, trump of the angel! Oh, voice of the Lord!

Blessed hope, blessed rest of my soul!

And Lord, haste the day when the faith shall be sight,

The clouds be rolled back as a scroll;

The trump shall resound, and the Lord shall descend,

Even so, it is well with my soul.

One of my favorite songs!

Suffering...

A white tiger who had suffered at the hands of man but is now in a sanctuary to protect and save his life 

3- 11- 09

Jer. 29:11 “For I know the thoughts that I think toward you, saith the LORD, thoughts of peace, and not of evil, to give you an expected end.”

Suffering...

Why does God allow so much suffering? I totally feel like I’m on a boat drifting on the water that is full of sulphur, the product of an erupted volcano, and the tiny boat is taking on the sulphuric acid water and is slowly disintegrating.

The NIV puts the Jeremiah scripture like this:
Jeremiah 29:11, “‘For I know the plans I have for you,’ says the LORD. ‘They are plans for good and not for disaster, to give you a future and a hope.’” (NLT)

They changed the words to say plans for you; good not disaster. A future and a HOPE! I’ll take the words any way they come these days because, in my suffering, I cling to His every word, because I know nothing else. 

The other day my hubby woke with a stiff neck also. Now we both have sore necks and we attribute it to the new mattress. We lived so long sleeping on the fifteen-year-old mattress our bodies grew accustomed to the dips and curves, with the new firm mattress, we need to reacquaint our bodies form to the mattress and it's taking its time getting to know us. 

I told my hubby that our bodies are getting older and these pains come with age and it’s been pointed out to me more than twice in just two weeks, ‘getting older is no fun’ from the elders of the world. Since the older generation has planted that seed in my mind, I now feel as if it is my aging body. Time is degenerating my skin, my insides, my everything and it’s only a matter of time before it totally disintegrates. Thanks, elders, here I just thought I had an illness at my young age.

It seems around every corner people are negatively dumping their thoughts on me. It’s as if they’re saying I don’t have enough with my suffering let me dump some more on you. From my mother, “You’re HOW much older than Steven? You better take good care of him, there are plenty of ‘young’ girls out there.” To my mother-in-law stating, ‘this getting old stuff isn’t much fun’. Out of context, it looks harsh but they didn’t know how bad I’ve been, only the people who REALLY care and KNOW me, know! Thank you to my dear friends.

I have done so much suffering in my life I thought I’d have a spell of no suffering but then I laugh, no suffering, that is funny as all get out. Just as I said yesterday that God loves us all the same, uniquely, individually but the same. He knows our suffering and is more than willing to give us comfort during these trying times. I cry out, ‘Lord, give me comfort. Comfort in life and comfort in death.’ Eggshells scattered all around, tread lightly.

I’m sure there are many of you out there saying, “Suffering? You don’t KNOW suffering like *I* know suffering.” I think each and every one of us sees our suffering as worse than the others, yet you need to understand, our suffering is unique to us as individuals. He has a different plan so each person has a different type of suffering. Your suffering is no harder than mine, nor mine yours; suffering is suffering plain and simple! Like a fine garden, some just need a little more tending. I’m in the ‘overly brown garden needing lots of tending’ stage. 

I would like to let my dear friend, who for the past year has sent me funds monthly! Yes, monthly, to ease my burden of paying for supplements and anything I need to ease this pain I suffer with daily. They need to know how GRATEFUL I am because I don’t believe I thank him/her enough. I will keep my benefactor private for now because the Lord knows and that is good enough for all of us. Help is vital to me and so much appreciated, I’m honored that God chose this person to help me. My love to you!

This week I purchased (waiting for it to arrive) a reasonably priced neck traction device that chiropractors recommend for stiff necks and such. Since I can’t afford a chiropractor and gave up taking Naproxen for my pains, this device will aid in the pains in my neck! There has to be relief for me somewhere and maybe this will be the device I need to find a little reprieve, a little comfort. Just letting my dear friend know, the funds are going to assisting me in staying alive! Take that to heart, you’re doing great, my friend! This also relieves a lot of stress from my hubby who has to pay for medical insurance for me, organic food, and anything else this newly high-maintenance gal might need.

While suffering is part of the plan I often think of those that never suffer and have a ‘looks can be deceiving’ life! I honestly don’t think they are not suffering, I just think they have a veil so no one sees their distress. I also think we all suffer and share differently. They might hide their pain out of shame or because they don’t want to be that person that always laments and whines about everything from a stubbed toe to a broken nail. While I usually don’t share my minor discomforts, here lately it’s all I have to offer, muscling through the torment daily with a Popeye of a God who is carrying all of my heavy burdens, and He never complains! *big old smile*

My days are being spent away from the negative dumping ground of social media. Facebook is taking too much of a toll on me and I know my friends understand my time away or they wouldn’t call themselves friends now, would they? I’m told that I’m like a bad penny, I’ll show my face again, but now, the time just isn’t right. When it is, you bet your bottom dollar I’ll come back raring to make you all smile! It’s what I do best.

Spring will be arriving soon, as will my New Year, and my days of isolation may be coming to an end, I pray. I’m assured of that with the warming of the afternoons, the Robins hanging around the brownish/green lawn, and the longer days. I’m not adding sunshiny days because they are still sporadic, soon though, soon! My suffering might have an expected end in sight, one of HOPE! 

May God be with you all! 

Pss. 33:22 “Let thy mercy, O LORD, be upon us, according as we hope in thee.”

Jesus suffered more than us all! 

My pain is nothing!

Faith, Strength, and Determination

Side by side, me and my God

Zeph. 3:17 “The LORD thy God in the midst of thee is mighty; he will save, he will rejoice over thee with joy; he will rest in his love, he will joy over thee with singing.”

Faith, Strength, and Determination

Again, after the diagnosis, I knew what I wanted and it wasn’t chemotherapy. The days following the Big C diagnosis I did a lot of talking to God and asking Him where it is that HE would have me go. I was listening, hearing, and leaning on his promise. I knew what I didn’t want and that was to be sliced open, radiated, and given chemotherapy for YEARS then be placed on meds until my imminent death. Or I didn’t want midway through the course of the treatments to change my mind THEN decide to go the healthy HEALING holistic route. No, I would need FAITH, strength, and determination!

I felt like this was a race of a lifetime. The race where I might struggle and fall at times and would surely need God to come and hold me up and help me finish each stretch of the journey. You see, I think people get the wrong impression of God being a punishing God, one who wants to take you out swiftly because you’re a sinner. They could not be more wrong. This is my take.

When God created the world and sin slithered into the picture God the disciplinarian stepped in to show mankind the path that we should go. We were aimed at leaning on Him and trusting that He knew what was right for us. Man didn’t want a Father to lean on; man relied falsely on himself to take care of matters. Selfishness and greed ruled and God in his eternal love for what he created gave discipline where discipline was due. Then he rested, He let man try and shape his moral dilemma and we failed miserably.

That’s where Jesus stepped into the picture. God, as man, lived on earth to feel the intensity of what sin in the world was in ‘real time’. What is so ironic is that God could feel the anger of mankind destroying all that He created, but he was never tempted to be like man. That is what set Jesus apart from the selfish greedy man. Man could not, then or now, accept the fact that there was perfection allowed to walk the earth. Man was and is still consumed with himself only allowing God into the picture when they need Him.

Prov. 3:5 “Trust in the LORD with all thine heart; and lean not unto thine own understanding.”

I am deeply rooted in my faith. It is no better than yours and no worse, it is different. We are all allowed to think and feel differently about our beliefs as long as we know where to lean when times of trouble arise. Man still wants to do things for himself, a kind of not wanting to ‘burden’ God with his problems sort of matter. As for me, I always lean on God for even the smallest of things, seriously!

Well, this diagnosis was nothing small but I still turned to Him first. Was I wrong? In my mind, NO, I’m different. Some people take a doctors word as solid truth with no room for error. Some go for a second and third opinion for a reason, I like to think it’s because their gut instinct is telling them something doesn’t feel right. My gut instinct is God in me, holding me up and carrying me and giving me strength and determination in places where others might fall. He shows me the way in which to go and I follow with no doubt or mistrust in the midst.

1 Pet. 1:8 “Whom having not seen, ye love; in whom, though now ye see him not, yet believing, ye rejoice with joy unspeakable and full of glory:”

I got a first and second opinion and what it felt like was that same small child who was on the playground being bullied. I felt like my opinion didn’t matter and I was supposed to lay down my life for this disease and adhere to the almighty doctor who doesn’t know one hair on my head but thinks he knows what is best for me. Bullies belittle and shame you into submission. Out of fear, you crumble and fall, it's the human thing to do.

Luke 12:7 “But even the very hairs of your head are all numbered. Fear not therefore: ye are of more value than many sparrows.”

I went that route of the bullies as a kid. It didn’t work then and I was led down the wrong path and only when I trusted with everything in me, God my Father, that is when my life turned around. At the doctor’s office, I felt the taunting fingers, pointing at me, screaming and telling me I’m wrong and that I was nothing, I was not committing to their plan and no, they were not happy about it. Just as it was when I was a kid and turned to God, I was shunned, the doctors then released me and would not claim responsibility if anything were to go wrong. No tests, no follow through, nothing. Like bullies who didn’t get their way, they stomped off into the sunset, onto their next victim.

I was scared and alone but everything in me told me to trust in God. As in the past, I knew the path, I knew the trust and faith I needed to put in Him. No, it would not be an easy task but it was a route that I trusted in my very being, my soul was in the safe familiar territory.

By the grace of God, I was now filled with strength and determination. Out in the small crowd of family and friends, there would still be wagging fingers, taunting and unbelieving of the idiocy. How dare I go against what they themselves found to be truth and trust in the doctors. Who am I to go against the grain? What makes me any better? Nothing, she’ll fall! I allowed the doubts of the naysayers to tinker in my mind for a spell. Not for very long as you can see. Almost one year has passed and I’m still going strong, feeling great, am forty pounds lighter, and people now want what I have! 

Trust, faith, strength, and determination. They’re all yours! They’re already inside you, you just need to tap into them. It is hard since we’ve been conditioned to trust our fellow man but let me tell you this, in all honesty. You know how you have a friend that you trust with your life? You’ve told the biggest secret to and they carry it with them without sharing it? Then one day it happens, you come home and find that the secret has been spilled? Yeah, God’s not like that. He is the ONLY One you can tell the secret to and trust He won’t tell a soul. As a matter of fact, He already knows the secret before you tell Him, He would just like you to claim it, put it out there for Him to carry for you. That’s me! I share with Him my deepest darkest secrets and trust Him to carry it to my grave. He does, with Light and Love.

As I go on, He is my strength and determination. My faith is in Him and Him alone. The taunters and teasers are silenced. The naysayer is drowned out, limping along the road in doubt and fear in a sunny oasis waiting for one dribble of water. Me, I have a fountain full of faith that I’ll shower them with if only they’d be open to receive. 

Faith is the substance of things hoped for, the EVIDENCE of things not seen. (My motto by the way) Strength is the leaning not on my own understanding and trusting God implicitly. The determination is knowing there is an eternal reward at the end.

Heb. 11:1 “Now faith is the substance of things hoped for, the evidence of things not seen.”

May the Grace of God be with you all! 

Addicted to Love

Total Solar Eclipse 9-21-17

Pss. 72:13 “He shall spare the poor and needy, and shall save the souls of the needy.”

Addicted to Love

Do you know of an addict? Whether to drugs, coffee, alcohol, food, pain, or the internet? There are many different addictions in this society all of which we either ignore, embrace, dive into and believe we are exempt, we just call them habits.

I’m a habitual addict. I’ve been addicted to alcohol, drugs, cigarettes, you name it but the one that has lasted the longest is my addiction to God. Yup, you read it right, I’m addicted to God. I know the signs, I’ve lived with addictions all of my life and God is one addiction I don’t want to be released from. God is Love so in essence, I’m addicted to Love.

Can a person be addicted to God? I know some of you are probably rolling your eyes right now and saying I’ve gone too far but seriously, Jesus was my first crush, my first love! If any of you have had a first love while you may have loved many other people in your life, none other is remembered as the first love. Like a marker of how far you’ve come in life or how much you’ve loved and how much you’ve been loved.

As you know, since I’ve told you my story over and over, I paint a bleak picture of my life as a child, I color my family (bloodline) in a dark light because I know no other shade to paint them. A perfect example is that I tell members of my family that I have a disease that many have accepted as a killer disease and a disease that has taken a good portion of family members over my life, but no one has shown signs of caring for me. Except for my niece, a cousin who offered money, compassion and prayer and maybe my sister care but that’s it. I come from a big family and they are so consumed with their money and living their own high life or low life that the peon Joni warrants no thought.

Now I know some of you will say that maybe they don’t know what to say in this circumstance or that they don’t know how to approach me but please don’t try to make me feel better here, these people care only about themselves and are addicted to their own lives. Eleven months is a long enough time to show some sort of heartwarming response. They are the very reason I had all of those other negative addictions in the first place, I looked for love and found it nowhere except in drugs and alcohol. I raised up an addictive personality, so when I accepted Christ into my life, I craved, yearned, sought the completeness that no other addiction gave me.

I gave up the negative addictions and quietly replaced them with the non-life threatening ones like God, writing, books, the Internet, and food. Yes, you can be addicted to food, look at society, the ones not addicted to the harmful substances are more than likely consumed with a non-lethal substance consuming their life. As we all know, too much of even a good thing can be bad for us but note, for ME, I’ve never found anything bad with drinking the richness of God except that I may have lost a few friends along the way.

I overindulge myself in the Word to the extent I may come off as self-righteous when really all I am is a human being in love with the Lord. It’s hard sometimes viewing the world and seeing friends as equals when all I see is a blinding Light shining in my eyes. Squinting and peering through the slivers in my eyes doesn’t allow me to see much of anything and in the New Year, I aim to work on looking around and making a note to find anything out there that makes living worth it all.

Now don’t get me wrong, my memory hasn’t allowed me to memorize scripture verse by verse. The drugs and alcohol addictions damaged brain cells so much so that I have a hard time retaining input. I remember the essential parts of God and that is good enough for Him and I. In the beginning of my faith journey, I dissected the love of my life with a fine-toothed comb, from the beginning to what I perceive as the end times, but honestly, I don’t do the dissecting anymore as it takes my eyes off of my final destination.

Our addictions shape us, literally! Food shapes us, our consumptions mold us, and often times we can’t see past the roadblocks that we’ve placed neatly around to ‘protect’ us from the outside world. It is during the Christmas season that people get a small glimpse of the outside world and what is really going on around their protective layer of their space. Compassion crawls in the door, lights shine in the dark, joy warms the heart, hope inebriates the soul. Have you ever thought as to why this happens around Christmas? It’s because for one brief moment in time people can actually get a glimpse of Christ in action throughout the season. The world opens their eyes and beholds… the Love of my life!

Jer. 31:3 “The LORD hath appeared of old unto me, saying, Yea, I have loved thee with an everlasting love: therefore with lovingkindness have I drawn thee.”